100% of your donation goes directly toward research, treatments, and finding a cure, thanks to our angel donors who underwrite our operations.

The Night Is Almost Here

Venture Into Cures

November 11, 2026 · Pier Sixty · New York City

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Sponsorships and tickets are open. Join us for the evening that funds the next breakthroughs in EB research.

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THE STORY

WHAT IS EB?

THE SCIENCE

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THE MODEL

Venture Philanthropy

EBRP has drawn independent recognition from leading academic and policy institutions, including:

​At EBRP, we have one bold audacious goal: heal and cure EB by 2030. In the process, we’re pioneering a model that can benefit the more than 400 million people affected by a rare disease. 

Look Inside Our Model

OUR IMPACT

What is EB 500,000 people worldwide live with EB Epidermolysis Bullosa (EB) is a rare, life-threatening genetic skin disorder that affects children from birth. About EB → Our model 3 EB treatments now approved We're building a faster path to heal EB. Our innovative model puts speed in the system to find cures quickly. Our model → Financials 100% of every gift funds research Committed to financial responsibility. With the highest charity ratings, your dollars make an impact. Financials →

LIFE WITH EB
Click on the photos to read each child's story.

SALIM: DYSTROPHIC EB

CLARA: EB SIMPLEX

RYAN: JUNCTIONAL EB

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