LIFE WITH EB Click on the photos to read each child's story.
SALIM: DYSTROPHIC EB
CLARA: EB SIMPLEX
RYAN: JUNCTIONAL EB
VENTURE INTO CURES WITH US EBRP's model is leading the way not just for EB, but pioneering the path to cures for the 7,000 rare diseases impacting 10% of the global population. Click the photos watch clips of celebrity ambassadors supporting our mission