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Epidermolysis Bullosa is a group of life-threatening genetic disorders that affect the body's largest organ: the skin. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and wounds that may never heal.

​EB Research Partnership is funding research to accelerate the path to treatments and cures for EB. 

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Life With EB

Click on the photos to read each person's EB story.

Ryan
​​Junctional EB

Brady
​Dystrophic EB

Rowan
Dystrophic EB

Mikey
​Dystrophic EB

Jackson
​Dystrophic EB

Anna
​EB Simplex

Copyright @2014 EB Research Partnership. All rights reserved. EB Research Partnership is a 501(c)(3) non profit.