EB Research Partnership is dedicated to finding a cure, and finding it quickly.

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Thank you to our friends at Door Knocker Media for making this project possible.

building a faster Path to cure EB.

By fixing a single mutation, we can change the lives of many.
Join us on our venture into cures, your investment will be transformational.

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"It's about the most insane skin disorder you can imagine. And when you realize it also affects the internal organs, then you see it as diabolical."
- Eddie Vedder, EBRP Co-Founder

What is EB?

$35 million raised.
65 innovative projects funded.
14x the amount of clinical trials.

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Epidermolysis Bullosa is a group of life-threatening genetic disorders that affect the body's largest organ: the skin. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and wounds that may never heal.

Life With EB
Click on the photos to read each person's EB story.

Ryan
​​Junctional EB

Brady
​Dystrophic EB

Rowan
Dystrophic EB

Mikey
​Dystrophic EB

Jackson
​Dystrophic EB

Anna
​EB Simplex

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