Epidermolysis Bullosa (EB) is a rare and life-threatening genetic skin disorder that affects children from birth.

About eb

We're building a faster path to heal EB. Our innovative model puts speed in the system to find cures quickly.

OUR MODEL

Committed to financial responsibility. With the highest charity ratings, we ensure your dollars  make an impact.

Financials

LIFE WITH EB
Click on the photos to read each child's story.

SALIM: DYSTROPHIC EB

CLARA: EB SIMPLEX

RYAN: JUNCTIONAL EB

#EBActive | Endurance Events for EB Research

CLIP IN TO CURE |  September 20 - October 4, 2021 
Join us for Clip In To Cure, EBRP's inaugural cycling event to #healEB! Rack up fundraising dollars and minutes in the saddle on your own or with a team. Each registrant will receive a Clip In To Cure t-shirt and is encouraged to hit fundraising levels to win awesome prizes along the way. Click the button below to register.

Register

VENTURE INTO CURES WITH US
EBRP's model is leading the way not just for EB, but pioneering the path to cures for the 7,000 rare diseases impacting 10% of the global population.
​Click the photos watch clips of celebrity ambassadors supporting our mission

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