Epidermolysis Bullosa is a group of life-threatening genetic disorders that affect the body's largest organ: the skin. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement and wounds that may never heal.
EB Research Partnership is funding research to accelerate the path to treatments and cures for EB. 

Life With EB

Click on the photos to read each person's EB story.
Ryan
​​Junctional EB
Brady
​Dystrophic EB
Rowan
Dystrophic EB
Mikey
​Dystrophic EB
Jackson
​Dystrophic EB
Anna
​EB Simplex

Copyright @2014 EB Research Partnership. All rights reserved. EB Research Partnership is a 501(c)(3) non profit.