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THE STORY

WHAT IS EB?

THE SCIENCE

Explore the Science

THE MODEL

Venture Philanthropy

EBRP has drawn independent recognition from leading academic and policy institutions, including:

​At EBRP, we have one bold audacious goal: heal and cure EB by 2030. In the process, we’re pioneering a model that can benefit the more than 400 million people affected by a rare disease. 

Look Inside Our Model

OUR IMPACT

Epidermolysis Bullosa (EB) is a rare and life-threatening genetic skin disorder that affects children from birth.

About eb

We're building a faster path to heal EB. Our innovative model puts speed in the system to find cures quickly.

OUR MODEL

Committed to financial responsibility. With the highest charity ratings, your dollars  make an impact.

Financials

LIFE WITH EB
Click on the photos to read each child's story.

SALIM: DYSTROPHIC EB

CLARA: EB SIMPLEX

RYAN: JUNCTIONAL EB

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