EB Research Partnership
  • Epidermolysis Bullosa
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EB Research Partnership is dedicated to finding a cure, and finding it quickly.
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Epidermolysis Bullosa (EB) is a rare and life-threatening genetic skin disorder that affects children from birth.
About eb
We're building a faster path to heal EB. Our innovative model puts speed in the system to find cures quickly.
OUR MODEL
Committed to financial responsibility. With the highest charity ratings, we ensure your dollars  make an impact.
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LIFE WITH EB
Click on the photos to read each child's story.
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SALIM: DYSTROPHIC EB
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CLARA: EB SIMPLEX
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RYAN: JUNCTIONAL EB
VENTURE INTO CURES WITH US
EBRP's model is leading the way not just for EB, but pioneering the path to cures for the 7,000 rare diseases impacting 10% of the global population.
​Click the photos watch clips of celebrity ambassadors supporting our mission

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EB Research Partnership

132 East 43rd St, Suite 432
New York, NY 10017
info@ebresearch.org
646-844-0902
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COPYRIGHT @2021 EB RESEARCH PARTNERSHIP. ALL RIGHTS RESERVED. EB RESEARCH PARTNERSHIP IS A 501(C)(3) NON PROFIT.

  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials
    • Community Council
    • Apply for a Grant
  • Get Involved
    • Donate
    • Sponsor
    • Events
    • Shop
  • Media
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlight
    • Leadership >
      • Board of Directors
      • Staff
      • Founders
  • Donate