Epidermolysis Bullosa (EB) is a rare and life-threatening genetic skin disorder that affects children from birth.

About eb

We're building a faster path to heal EB. Our innovative model puts speed in the system to find cures quickly.

OUR MODEL

Committed to financial responsibility. With the highest charity ratings, we ensure your dollars  make an impact.

Financials

LIFE WITH EB
Click on the photos to read each child's story.

SALIM: DYSTROPHIC EB

CLARA: EB SIMPLEX

RYAN: JUNCTIONAL EB

UPCOMING EVENTS

#TakeFlight from July 23 - August 6 in this year's Take Flight Race for EB! Rack up fundraising dollars and miles over a 2 week period to compete on your own or with a team. Each registrant receives an EBRP water bottle to stay hydrated and is encouraged to hit fundraising levels to win awesome prizes along the way - like an Nike x EBRP Half-Zip! Register today by clicking the button below.

register now

VENTURE INTO CURES WITH US
EBRP's model is leading the way not just for EB, but pioneering the path to cures for the 7,000 rare diseases impacting 10% of the global population.
​Click the photos watch clips of celebrity ambassadors supporting our mission

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