What is eb? |
Individuals with EB lack critical proteins that bind the layers of the skin together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement and wounds that never heal. EB affects the body inside and out. Blisters occur all over the body, as well as in the eyes, mouth, esophagus, and other internal organs. EB causes severe pain, disfigurement, and, in too many cases, an early death from an aggressive form of skin cancer. It is estimated that EB affects at least one in every 20,000
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births. EB is not specific to any ethnicity or gender. Given that EB affects only 25,000 - 30,000 people in the US, advancing this research relies on the generosity of individuals, foundations, and corporations.
LIFE WITH EB
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