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OUR STORY

At EBRP, we have one bold audacious goal: heal and cure EB by 2030. In the process, we’re pioneering a model that can benefit the more than 400 million people affected by a rare disease. We are proud of the progress being made towards achieving that goal and more inspired than ever to continue advancing life-saving treatments and cures for EB families across the globe.

DOWNLOAD OUR IMPACT BOOKLET

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OUR IMPACT

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Epidermolysis Bullosa (EB) is a rare and life-threatening genetic skin disorder that affects children from birth.

About eb

We're building a faster path to heal EB. Our innovative model puts speed in the system to find cures quickly.

OUR MODEL

Committed to financial responsibility. With the highest charity ratings, we ensure your dollars  make an impact.

Financials

LIFE WITH EB
Click on the photos to read each child's story.

SALIM: DYSTROPHIC EB

CLARA: EB SIMPLEX

RYAN: JUNCTIONAL EB

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