March Town Hall
This month’s Town Hall, hosted by Michael Hund, CEO at EBRP, has a focus on Junctional Epidermolysis Bullosa, emerging therapies, and creative ways to rally your community.
Our speakers:
Jordan Eaves
When her son Wesson completed his battle with EB on September 5th, 2021, Jordan Eaves turned heartbreak into hope by founding Wesson’s Wish. In raising EB awareness, funding vital research, and supporting families affected by EB, this incredible organization is a love letter to Wesson and his legacy in action. During this month’s Town Hall, Jordan shares her family's story and discusses the creative initiatives and events they've started to support their mission and bring us closer to a cure.
Dr. Diana Reusch
Dr. Diana Reusch is an Associate Professor of Dermatology at UMass and a leading researcher in the EB space who will be discussing her team's work with Ataluren, an oral medication that promotes the readthrough of premature termination codons (PTCs), as a treatment for Junctional EB.
Dr. David Woodley & Dr. Mei Chen
Dr. David Woodley and Dr. Mei Chen are a dynamic duo who have been pioneers at the University of Southern California for over 20 years. They'll be discussing their life-saving work with Gentamicin and the current research being done to make it safer and more effective.
Our speakers:
Jordan Eaves
When her son Wesson completed his battle with EB on September 5th, 2021, Jordan Eaves turned heartbreak into hope by founding Wesson’s Wish. In raising EB awareness, funding vital research, and supporting families affected by EB, this incredible organization is a love letter to Wesson and his legacy in action. During this month’s Town Hall, Jordan shares her family's story and discusses the creative initiatives and events they've started to support their mission and bring us closer to a cure.
Dr. Diana Reusch
Dr. Diana Reusch is an Associate Professor of Dermatology at UMass and a leading researcher in the EB space who will be discussing her team's work with Ataluren, an oral medication that promotes the readthrough of premature termination codons (PTCs), as a treatment for Junctional EB.
Dr. David Woodley & Dr. Mei Chen
Dr. David Woodley and Dr. Mei Chen are a dynamic duo who have been pioneers at the University of Southern California for over 20 years. They'll be discussing their life-saving work with Gentamicin and the current research being done to make it safer and more effective.
EBRP live Town Halls
Our monthly Live Town Halls help drive research and awareness with informative discussions led by trusted specialists and advocates in the EB space. Topics include current research, clinical trials, caring for loved ones with EB, and more. Town Halls are open to anyone interested in learning more about EB and the future of EB treatment and care. Check out more of our Town Halls here.
To register for our next Live Town Hall, click here.
To register for our next Live Town Hall, click here.
