EB Research Partnership
  • Epidermolysis Bullosa
    • What is EB?
    • Resources
    • Life with EB
  • Research
    • Funded Projects
    • Consortia
    • Clinical Trials
    • Scientific Advisory Board
    • Apply for a Grant
    • Community Council
  • Get Involved
    • Donate
    • Venture Into Cures
    • Cause The Wave
    • Sponsor
    • Events
    • Shop
  • Media
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlight
    • Leadership >
      • Board of Directors
      • Staff
  • Donate
Picture

FEATURING JILL & EDDIE VEDDER AND FRIENDS
​NOVEMBER 18, 2020 | 8PM EST

Watch Now



EB Research Partnership is dedicated to finding a cure, and finding it quickly.
Donate
Thank you to our friends at Door Knocker Media for making this project possible.

    #Comesayhi and stay up-to-date on all things EBrp

Submit

building a faster Path to cure EB.

By fixing a single mutation, we can change the lives of many.
Join us on our venture into cures, your investment will be transformational.

LEARN MORE
Picture
Picture
"It's about the most insane skin disorder you can imagine. And when you realize it also affects the internal organs, then you see it as diabolical."
- Eddie Vedder, EBRP Co-Founder
What is EB?
Picture
Venture Into Cures, our virtual event featuring Jill & Eddie Vedder and celebrity friends, will air on November 18 at 8pm EST. Learn more by visiting our event website.
Learn More
Picture
$35 million raised.
65 innovative projects funded.
14x the amount of clinical trials.
Learn More
Epidermolysis Bullosa is a group of life-threatening genetic disorders that affect the body's largest organ: the skin. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and wounds that may never heal.

Life With EB
Click on the photos to read each person's EB story.

Picture
Ryan
​​
Junctional EB
Picture
Brady
​
Dystrophic EB
Picture
Rowan
Dystrophic EB
Picture
Mikey
​
Dystrophic EB
Picture
Jackson
​
Dystrophic EB
Picture
Anna
​
EB Simplex

Copyright @2019 EB Research Partnership. All rights reserved. EB Research Partnership is a 501(c)(3) non profit.


EB Research Partnership

132 East 43rd St, Suite 432
New York, NY 10017
info@ebresearch.org
646-844-0902
Careers

Contact Us
​

Donor Privacy Policy
Donate

​
Our Mission

​
Shop

Press
Picture
  • Epidermolysis Bullosa
    • What is EB?
    • Resources
    • Life with EB
  • Research
    • Funded Projects
    • Consortia
    • Clinical Trials
    • Scientific Advisory Board
    • Apply for a Grant
    • Community Council
  • Get Involved
    • Donate
    • Venture Into Cures
    • Cause The Wave
    • Sponsor
    • Events
    • Shop
  • Media
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlight
    • Leadership >
      • Board of Directors
      • Staff
  • Donate