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Thank you to our friends at Door Knocker Media for making this project possible.
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"It's about the most insane skin disorder you can imagine. And when you realize it also affects the internal organs, then you see it as diabolical."
- Eddie Vedder, EBRP Co-Founder |
Run or walk in the first Take Flight 5K and Fun Run from August 16 - 30th. Click below to learn more and register yourself, your friends, and your family!
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$35 million raised.
65 innovative projects funded. 14x the amount of clinical trials. |
Epidermolysis Bullosa is a group of life-threatening genetic disorders that affect the body's largest organ: the skin. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and wounds that may never heal.
