The Community Council has been created to educate and inform the EB community with reliable and current information from trusted specialists and researchers in the field. It has representation of various viewpoints and values from within the EB community. The Community Council is open to all members of the EB community (individuals with EB, families, advocates, doctors, supporters, etc). Throughout the year, the Community Council will host a variety of discussions on a specific topic related to EB. Topics could include current research, clinical trials, advocacy, genetics, and best practices.
Community Council Sponsors