eb Research project grants

EB Research Partnership (EBRP), a 501(c)(3) non-profit organization, awards grants for research projects with the potential to lead directly to commercially feasible products and therapies for treating and/or curing Epidermolysis Bullosa (EB). 

Process
Applicants are invited to submit an application via EBRP’s grants management system.  Applications will be evaluated and scored by EBRP's Scientific Advisory Board (SAB). Based on the SAB’s evaluation and scoring of applications and other criteria, EBRP’s Executive Board will select specific projects for funding. Upon approval and if not already in place, EBRP will ​establish research contracts with the appropriate host institution(s).  Any request by EBRP for additional information should not be considered as a Notice of Grant Award, nor should it be construed as an indicator of possible award. Grants awarded will be subject to EBRP Grant Guidelines, including a 5% limit on indirect costs. EBRP employs a venture philanthropy model for all funded projects, unless a specific waiver is granted for a highly specific reason. We also require documentation of Humane Care and Use of Laboratory Animals and documentation of Human Subjects approvals, whenever necessary.

EB Research Partnership abides by a Whistleblower Policy and Anti-Corruption Policy.

Criteria
Research projects submitted for review:

• Should be designed to result in the creation of EB therapies with the aim of commercialization within the next 1-4 years.  Approaches that lead to meaningful step changes in the quality of lives of those living with EB and/or aim to be curative will be prioritized.  All approaches must include thoughts around commercial sustainability. ​
• May relate to repurposing existing drugs or products for EB, if expected to significantly impact EB patients’ quality of life
• May be intended to provide localized or systemic benefit to EB patients.
• May involve pre-clinical or clinical trial work. However, clinical trial work is strongly preferred. Projects involving pre-clinical work should include a detailed plan and timeline regarding commercialization.
• May relate to developing research-enabling tools, such as data collection and analysis platforms, to accelerate clinical trials.
• Should not be concerned primarily with basic or open-ended research projects without the intention to lead directly to commercially feasible EB therapies.

Grants awarded will provide project funding for 1 year. Multi-year research applications should include a proposed timeline and milestones. Depending upon the success of the initial year’s activity and availability of future funding, there is potential for grants to be renewed annually for up to 5 years.

Current Grant Cycle
EBRP's second and final grant cycle of 2026 is now open and accepting applications. Please click the button below to access the application portal and submit your application. The deadline for this cycle is Friday, September 11th at 11:59pm ET. Please reach out to [email protected] with any questions. We look forward to receiving your application!

ACCESS APPLICATION PORTAL

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EB Clinical Research Consortium (EBCRC) GRants

Please note that this currently open cycle also includes funding opportunities for our EB Clinical Research Consortium (EBCRC) sites. Please only apply for this opportunity if you are a member of an EBCRC site looking to apply for EBCRC related funding. Otherwise, please apply under our “Research Grant” funding opportunity. Applications for EBCRC funding have the same deadline and must also be received by Friday, September 11th at 11:59pm ET.

ACCESS APPLICATION PORTAL