In our recent community council with the Chiesi Total Care Team, we delved into the comprehensive support services offered to patients. The Chiesi Total Care Team serves as a one-stop resource designed to make the therapeutic journey smoother for individuals dealing with rare diseases.
The dedicated team made up of pharmacists, case managers, virtual wound care nurses, insurance support, and more aim to ensure patients are supported every step of the way, from the moment a prescription is made to ongoing care and advocacy.
“[At Chiesi Total Care], we’re there with you through the TOTAL therapy journey. It’s really a one-stop resource for patient support. We really want to make it as easy as possible, taking on headaches for you along this journey… and do everything in our power to get the product in your hand,” says Erica Stick, Patient Services Director at Chiesi Global Rare Disease.
The session provides a detailed overview of the Chiesi Total Care program, highlighting how it functions as an all-encompassing resource for patients moderated by our CEO, Michael Hund, and featuring Head of Patient Advocacy at Chiesi Global Rare Diseases, Stuart Seidman, and Erica Stick, Patient Services Director at Chiesi Global Rare Diseases.
The dedicated team made up of pharmacists, case managers, virtual wound care nurses, insurance support, and more aim to ensure patients are supported every step of the way, from the moment a prescription is made to ongoing care and advocacy.
“[At Chiesi Total Care], we’re there with you through the TOTAL therapy journey. It’s really a one-stop resource for patient support. We really want to make it as easy as possible, taking on headaches for you along this journey… and do everything in our power to get the product in your hand,” says Erica Stick, Patient Services Director at Chiesi Global Rare Disease.
The session provides a detailed overview of the Chiesi Total Care program, highlighting how it functions as an all-encompassing resource for patients moderated by our CEO, Michael Hund, and featuring Head of Patient Advocacy at Chiesi Global Rare Diseases, Stuart Seidman, and Erica Stick, Patient Services Director at Chiesi Global Rare Diseases.
Community COuncil: Highlights
- 16:00: EBRP CEO Update
- 20:55: Chiesi Patient Advocacy
- 28:33: Chiesi Total Care
- 45:00: Q&A Begins
Community COuncil: resources
Chiesi Total Care Filsuvez
Community COuncil: Helpful Q&A
- QUESTION: In order to start the process and get the prescription, does a family need to work with an academic medical center or major university, or can they work with their local dermatologist?
- Chiesi accepts prescriptions for FILSUVEZ from both academic medical centers/major universities or a local dermatologists. The decision is made between the patient and their provider.
- Chiesi accepts prescriptions for FILSUVEZ from both academic medical centers/major universities or a local dermatologists. The decision is made between the patient and their provider.
- QUESTION: When working with Chieasi total Care, will you be working with one person or a team?
- Patients have a dedicated care coordinator and access to a team (virtual wound care nurse, pharmacy team, insurance support). The team collectively manages the patient file, ensuring comprehensive support, including 24-hour pharmacist access.
- Patients have a dedicated care coordinator and access to a team (virtual wound care nurse, pharmacy team, insurance support). The team collectively manages the patient file, ensuring comprehensive support, including 24-hour pharmacist access.
- QUESTION: How do you see FILSUVEZ being a complementary therapy to VYJUVEK for those patentees with DEB?
- No clinical studies evaluating the drug interaction potential of FILSUVEZ have been conducted. We recommend consulting with your clinician on how to use FILSUVEZ in complement with other therapies and treatments in your care plan.
- No clinical studies evaluating the drug interaction potential of FILSUVEZ have been conducted. We recommend consulting with your clinician on how to use FILSUVEZ in complement with other therapies and treatments in your care plan.
- QUESTION: How often should Filsuvez be applied? Should it be applied over the full body or only over wounds that are affected?
- The treating physician decides the application frequency and coverage. Detailed application information is available on filsuvez.com, and for any further questions, nurse and wound care support is provided by Chiesi Total Care.
- The treating physician decides the application frequency and coverage. Detailed application information is available on filsuvez.com, and for any further questions, nurse and wound care support is provided by Chiesi Total Care.
- QUESTION: Does the product require refrigeration?
- FILSUVEZ does not require refrigeration but should be kept away from environmental extremes. Shipment scheduling from Chiesi ensures delivery at a convenient time and place for you which your Chiesi Total Care team can help coordinate. For more product information, please visit filsuvez.com.
- FILSUVEZ does not require refrigeration but should be kept away from environmental extremes. Shipment scheduling from Chiesi ensures delivery at a convenient time and place for you which your Chiesi Total Care team can help coordinate. For more product information, please visit filsuvez.com.
- QUESTION: Have you gotten feedback about what patients have found most useful from the Chiesi Total Care Team?
- Patients have shared positive feedback regarding the extensive support and outreach from the Chiesi Care Team especially regarding insurance navigation and assistance with understanding and managing insurance requirements.
- Patients have shared positive feedback regarding the extensive support and outreach from the Chiesi Care Team especially regarding insurance navigation and assistance with understanding and managing insurance requirements.
- QUESTION: What will this cost if an individual doesn’t have private insurance (insurance through your employer)?
- Pricing depends on the insurance plan. Chiesi supports Medicaid and Medicare and offers co-pay assistance through Chiesi Total Care for commercial insurance plans. A separate 501(c)(3) foundation provides additional financial assistance for Medicaid and Medicare patients. Chiesi Total Care will provide you with information regarding the different copay assistance programs available, and if you do not have insurance coverage, you may be eligible for additional financial assistance.*
- QUESTION: Do you have any advice on how to bypass the multiple denials received before finally getting approvals from insurance companies?
- Ensure the healthcare provider submits comprehensive information and medical profiles, including wound pictures. Chiesi Total Care Team can assist with making appeals to your insurance providers, requiring additional consent.
- Contact the complex care team at the university/hospital where you are being treated and/or applying for a complex care coordinator within your insurance company.*
- QUESTION: We have in-home health care that are registered nurses or LPN’s, can they be briefed and instructed on how to apply FILSUVEZ?
- The Chiesi Total Care Team can assist with educating the patient’s current home health nurse. In order to do so, the patient family will likely need to provide consent for the Panther wound care nurse to speak to the home health nurse if they are discussing a specific patient.
- Please note that Panther wound care nurses will never travel to a patient home. The Panther nurse will communicate with the patient/family via telephone, email, or Zoom to provide education.
- For additional support on applying FILSUVEZ, patients, families, and caretakers are encouraged to watch this IFU video from filsuvez.com.
Have additional questions for the Chiesi Total Care Team? Email us at [email protected] !
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