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donating from your DAFMaking a donation from your Donor Advised Fund to support EB Research Partnership enables us to continue to fund the most innovative and promising EB research on the planet. By funding this research, your donation will allow us to accelerate treatments and ultimately cures from the bench in a lab to the bedside of a patient.
Using this online donation platform, donating from your DAF is safe, easy, fast, and tax-deductible! OUR IMPACTEBRP utilizes an innovative venture philanthropy business model. When making a grant to a research project, we retain the added upside of generating a recurring revenue stream if the therapy or product is commercially successful, then use the return on investment to fund additional EB research.
Your DAF donation has the ability to generate multiples of its original value until a cure is found. Further, this model and the cutting-edge research funded by EBRP not only has the potential to cure EB, but provide paths to cures for the 10,000+ other rare diseases that affect 10% of the global population, 95% of which have no approved treatments. |
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about eb research partnership
Our Mission
We're the largest global nonprofit funding research to discover treatments and cures for Epidermolysis Bullosa (EB), a group of rare and life-threatening genetic disorders that affect the body's largest organ - the skin. Children with EB lack proteins that bind the skin's two layers together, causing it to blister and shear off from even the slightest friction. To date, we've funded 170+ research projects, transforming the clinical landscape from just 2 clinical trials in EB when we were founded to 40 today, and from 0 treatments to 2 FDA-approved treatments.
Our Model
At EBRP, we pride ourselves on innovating to accelerate the path to a cure for EB. Through our Venture Philanthropy model, we negotiate a financial interest in the research we fund. If that research leads to a commercially successful therapy, we use our returns to fund additional EB research. In other words, your donation has the potential to grow to multiples of its original value.
We're the largest global nonprofit funding research to discover treatments and cures for Epidermolysis Bullosa (EB), a group of rare and life-threatening genetic disorders that affect the body's largest organ - the skin. Children with EB lack proteins that bind the skin's two layers together, causing it to blister and shear off from even the slightest friction. To date, we've funded 170+ research projects, transforming the clinical landscape from just 2 clinical trials in EB when we were founded to 40 today, and from 0 treatments to 2 FDA-approved treatments.
Our Model
At EBRP, we pride ourselves on innovating to accelerate the path to a cure for EB. Through our Venture Philanthropy model, we negotiate a financial interest in the research we fund. If that research leads to a commercially successful therapy, we use our returns to fund additional EB research. In other words, your donation has the potential to grow to multiples of its original value.
faqs
How can I donate through a Donor Advised Fund (DAF) to EB Research Partnership?
Donating from your Donor Advised Funds is safe, easy, and fast. Using the donation form above, making a charitable gift is a quick process:
1. Select the DAF ticker and confirm the company name in the widget
2. Enter your gift amount
3. Type in your email and address info for the receipt
4. Enter your brokerage account information
5. Virtually sign & make your gift!
Upon making a donation, you can elect to receive an automatically generated receipt that will be sent to the email address you provide. Grants and donations from your DAF are processed quickly and safely with The Giving Block.
Why does EB Research Partnership accept DAFs?
Donating from your Donor-Advised Fund (DAF) is a smart and impactful way to give to EBRP. There are many benefits of giving through a donor-advised
fund:
1. Strategic and Flexible Giving: Support charities over time while enjoying immediate tax benefits, with the flexibility to distribute funds later.
2. Family Involvement: Engage family members in charitable decision-making and pass on philanthropic values.
3. Legacy Building: Establish a lasting charitable legacy by consolidating your giving into one fund.
4. Maximize Tax Benefits: Optimize tax deductions by donating assets like stock, crypto or real estate and bundling contributions to exceed standard deductions.
Donate from your DAF today!
I need assistance with my DAF donation. How can I get in touch?
Thank you for your interest in supporting EB Research Partnership. To contact us with any questions, including how to donate through your DAF, please send us an email at [email protected] with the subject line, “DAF Donation”, or call 646-844-0902.
Donating from your Donor Advised Funds is safe, easy, and fast. Using the donation form above, making a charitable gift is a quick process:
1. Select the DAF ticker and confirm the company name in the widget
2. Enter your gift amount
3. Type in your email and address info for the receipt
4. Enter your brokerage account information
5. Virtually sign & make your gift!
Upon making a donation, you can elect to receive an automatically generated receipt that will be sent to the email address you provide. Grants and donations from your DAF are processed quickly and safely with The Giving Block.
Why does EB Research Partnership accept DAFs?
Donating from your Donor-Advised Fund (DAF) is a smart and impactful way to give to EBRP. There are many benefits of giving through a donor-advised
fund:
1. Strategic and Flexible Giving: Support charities over time while enjoying immediate tax benefits, with the flexibility to distribute funds later.
2. Family Involvement: Engage family members in charitable decision-making and pass on philanthropic values.
3. Legacy Building: Establish a lasting charitable legacy by consolidating your giving into one fund.
4. Maximize Tax Benefits: Optimize tax deductions by donating assets like stock, crypto or real estate and bundling contributions to exceed standard deductions.
Donate from your DAF today!
I need assistance with my DAF donation. How can I get in touch?
Thank you for your interest in supporting EB Research Partnership. To contact us with any questions, including how to donate through your DAF, please send us an email at [email protected] with the subject line, “DAF Donation”, or call 646-844-0902.
