​For a limited time, every gift is matched dollar-for-dollar, doubling the impact for EB research.

Thanks to angel donors who underwrite our operations, 100% of donations go to research.

DOUBLE YOUR DONATION

Make a Donation

Right now, gifts are matched during the Matter of Time $1 Million Match. Your donation directly funds research, clinical trials, and breakthrough therapies for EB.
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Thanks to our angel donors, 100% of every donation goes directly to research.

DONATE NOW

How we Turn Donations into Treatments

Most nonprofits fund research once. EB Research Partnership does something different.

When a treatment succeeds, the returns are reinvested into new research, helping fund the next breakthrough.
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That’s how our community has helped accelerate three FDA-approved treatments for EB, putting EB in the top 1% of rare diseases with multiple approved treatments.
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See How Venture Philanthropy Works

Take the Plunge

Join a global movement is jumping into icy water to change the future for those with EB.
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Host a plunge in your community or join one happening near you, every splash raises awareness and funds for research.

join the plunge

Matter of Time tells the story of families living with EB, scientists racing to develop treatments, and a global community refusing to accept “impossible."

Learn more about the film

Because for families living with EB, it’s not a matter of if.
It’s a matter of time.

EXPLORE OUR IMPACT