about the plunge
OUR STORY
Named after 8-year-old Elodie Kubik, who lives with a severe form of EB, the Plunge began as a local effort in Wellesley, Massachusetts, organized by childhood friends of Elodie’s mom. They wanted to do more for the family than just offer emotional support, and as they learned about EB and the larger rare disease community, it became clear how desperately diseases like EB need funding to find treatments and cures. In short: every dollar truly matters. Thus, the first Plunge for Elodie took place in 2018. Now in its 8th consecutive year, the event has grown into an international movement and has surpassed $2.5 million raised for critical research aimed at curing EB and other rare diseases. Help us reach our 2025 goal to bring us over $3Mtotal! We are dedicated to plunging and raising awareness until a cure is reached!
Named after 8-year-old Elodie Kubik, who lives with a severe form of EB, the Plunge began as a local effort in Wellesley, Massachusetts, organized by childhood friends of Elodie’s mom. They wanted to do more for the family than just offer emotional support, and as they learned about EB and the larger rare disease community, it became clear how desperately diseases like EB need funding to find treatments and cures. In short: every dollar truly matters. Thus, the first Plunge for Elodie took place in 2018. Now in its 8th consecutive year, the event has grown into an international movement and has surpassed $2.5 million raised for critical research aimed at curing EB and other rare diseases. Help us reach our 2025 goal to bring us over $3Mtotal! We are dedicated to plunging and raising awareness until a cure is reached!
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JOIN US!
Join us for the 8th annual Plunge for Elodie, an event to raise awareness and funds for critical research to treat and cure Epidermolysis Bullosa (EB). Participants plunge into chilly bodies of water and create fundraising teams to help heal EB. This year's plunge events will take place across 21 sites around the world. Even if you're unable to attend an in-person plunge, you're still encouraged to join the fun from wherever you are with our virtual plunge!
Join us for the 8th annual Plunge for Elodie, an event to raise awareness and funds for critical research to treat and cure Epidermolysis Bullosa (EB). Participants plunge into chilly bodies of water and create fundraising teams to help heal EB. This year's plunge events will take place across 21 sites around the world. Even if you're unable to attend an in-person plunge, you're still encouraged to join the fun from wherever you are with our virtual plunge!
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MEET ELODIE
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On July 15, 2016, Elodie was born with a rare genetic disorder called Epidermolysis Bullosa ("EB"). This disease means that Elodie is missing a critical protein that helps bind the layers of the skin together, making her skin extremely fragile. Her skin will break or blister frequently, with everyday contact. There are no cures for this disease right now.
Despite all of this and the resulting pain and discomfort from her disease, Elodie remains a happy, well-adjusted kid - she thrives at school, loves all things princess, has a burgeoning sense of humor, and is the best older sister to her brother Gus. In short, she is the sweetest girl in the world. We could all learn so much from this beautiful 8-year-old warrior. She inspires us to fight every day to bring her a much needed treatment, and ultimately a cure. We invite you to take the plunge with us and go all-in on the fight to #healEB and bring Elodie a much needed cure. All donations will benefit the EB Research Partnership, the largest non-profit dedicated to funding research aimed at treating and ultimately curing EB. |
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plunge in the press
Jessica Biel Just Introduced Us to the Next Ice Bucket Challenge
Wellesley residents support fund-raiser for ‘Butterfly Children’
Rare skin disease won’t stop Greenwich toddler
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