Plunge for elodie 2021 compilation video
Thank you to everyone who took the plunge, donated, and spread our mission to #healEB. Please enjoy this compilation video featuring your virtual plunges!
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about the plunge |
4-year-old Elodie Kubik was born with Recessive Dystrophic Epidermolysis Bullosa (EB). Like all children with EB, Elodie is missing a critical protein that binds the layers of the skin together, making it extremely fragile and causing severe pain and wounds, both internal and external. Today, there are no treatments for this life-threatening disease.
Elodie's mom's friends wanted to do more for the family than just offer emotional support. As they learned about EB and the larger rare disease community, it became clear how desperately diseases like EB need funding to find treatments and cures. In short: every dollar truly matters. Thus, the first Plunge for Elodie took place in 2018. Now in its 4th consecutive year, the event has grown into an international movement, raising $900,000 to date to fund critical research aimed at curing EB and other rare diseases.
This year, the Plunge honors the life of Sophia Ramsey, who lost her battle with EB far too young, but whose legacy and courage live on through our mission. Let's make waves until a cure is found!
Elodie's mom's friends wanted to do more for the family than just offer emotional support. As they learned about EB and the larger rare disease community, it became clear how desperately diseases like EB need funding to find treatments and cures. In short: every dollar truly matters. Thus, the first Plunge for Elodie took place in 2018. Now in its 4th consecutive year, the event has grown into an international movement, raising $900,000 to date to fund critical research aimed at curing EB and other rare diseases.
This year, the Plunge honors the life of Sophia Ramsey, who lost her battle with EB far too young, but whose legacy and courage live on through our mission. Let's make waves until a cure is found!
about elodie4-year-old Elodie Kubik was born with Recessive Dystrophic EB. On a daily basis, Elodie must endure more than any young child ever should - eating complications, doctor visits, wounds, painful bandage changes, bleach baths, and more. Even still, Elodie's adorable demeanor is unfazed - she thrives at school, loves all things princess, has a burgeoning sense of humor, and is the best older sister to her brother Gus. In short, she is the sweetest little girl in the world. We could all learn so much from this beautiful 4-year-old warrior.
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about sophiaThe world was blessed when Sophia Grace Ramsey was born on April 20, 2019. Shortly after, Sophia was diagnosed with Junctional EB. Sophia fought the incredibly painful disease with unmatched courage. Despite suffering so much, her spirit was always bright, and she gave her family unimaginable joy. Sophia loved goofy songs, her dog, and spending time with her family. Her smile could brighten any moment. Eventually, the devastating effects of EB became too much for Sophia's tiny body to carry. On May 15, 2020, just a few weeks after celebrating her first birthday, Sophia returned home to heaven. Supporting vital EB research is important to Sophia's family, who continue to share her message through Sophia's EB Hope, donating proceeds to EB Research Partnership. They are deeply committed to giving children like Sophia a chance at a life free of pain and suffering. With your support, Sophia's Hope could one day become a reality.
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