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The Plunge for Patterson was held Sunday March 30 on Alki Beach in support of research for treatments for Epidermolysis Bullosa (EB) , a genetic skin disorder. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off, leading to severe pain, disfigurement, and internal and external wounds that may never heal. Patterson is a nine year old, who along with his parents have to deal with his condition daily but they champion fund raising efforts like this to help support research into the disorder.
You have the opportunity this coming Sunday to do something fun that truly helps people. The Plunge for Patterson will see as many as want to participate in a dash into Puget Sound to raise funds for the-EB Research Partnership, a global non profit organization dedicated to finding a cure for Epidermylosis Bullosa.
Polar plunge raises thousands for John Hudson Dilgen, Staten Islander with rare skin disease3/23/2025
Dozens of participants — both two-legged and four-legged alike — partook in a polar plunge fundraiser in the waters off South Beach Sunday in the name of John Hudson Dilgen. Dilgen, a 22-year-old Tottenville resident, has been battling epidermolysis bullosa (EB), a rare, life-threatening genetic disorder that causes skin to blister and tear at the slightest touch, since infancy.
Nearly 150 people braved the cold and plunged head first into the waters at Morses Pond Beach in Wellesley on Saturday for the 8th Annual Plunge for Elodie fundraiser. “Our very good friend Emily from high school, her daughter was born with Epidermolysis Bullosa, we call EB” Kristan Khitikian, an event organizer, told WBZ NewsRadio.
Wellesley will host 8th annual Plunge for Elodie to benefit Epidermolysis bullosa research3/21/2025
A clarity hits Wellesley's Matthew Liebman when he submerges. The junior football player has participated in the Plunge for Elodie the past two years with his football teammates. "You run in and a shock hits you," Liebman said. "There's so many people running with you. You get out and you're freezing, but it's really fun."
Community members stepped up to help raise awareness about a rare, life-threatening disease. The annual Plunge for Elodie took place earlier Saturday at the Greensboro Aquatic Center. The fundraiser included people diving into the water to raise money to support research on epidermolysis bullosa. The genetic disorder causes the skin to be very fragile. Today's plunge was held in honor of Brooks Kendrick. The 5-year-old has a milder subtype of the disorder called EB Simplex.
The 8th annual Plunge for Elodie is scheduled for March 22 at 10:30am at Wellesley’s Morses Pond to raise awareness and funds regarding the rare, life-threatening genetic skin disorder Epidermolysis Bullosa. More than 20 such events will be held across six countries with a fundraising goal of $600K. The Plunge for Elodie was created by 10 childhood friends of Elodie’s mom, Emily Kubik. Elodie was born in 2016 with a severe form of EB. Kids with EB are called “Butterfly Children” because their skin is as fragile as the wings of a butterfly. They face severe pain, open external and internal wounds, and a grueling daily bandaging process.
Padres, Mariners to Play for ‘Vedder Cup’ in Honor of Pearl Jam Frontman – and for Charity Too3/14/2025
The Padres and Mariners will be pursuing more than their respective division titles when they meet this year. Beginning this season, the teams said Friday, they will join rock star Eddie Vedder in creating the real Vedder Cup, the prize for the victor in their six-game season series...As part of the annual series, the teams will join in supporting the EB Research Partnership, a charity co-founded by Eddie and Jill Vedder to fund research to discover treatments and cures for Epidermolysis Bullosa, a rare genetic condition that causes skin damage, including blistering and tearing.
The San Diego Padres and Seattle Mariners announced today along with rock and roll hall of famer, multi-Grammy award winner, rock legend, and one-time resident of both San Diego and Seattle, Eddie Vedder that the two clubs will play annually for the Vedder Cup in their season rivalry series beginning in 2025... As part of the annual series, the Mariners and Padres will also partner to support EB Research Partnership, a charity co-founded by Eddie and Jill Vedder as a trailblazing nonprofit organization dedicated to funding research to discover treatments and cures for Epidermolysis Bullosa (EB).
A fundraising Polar Plunge to honor John Hudson Dilgen will take place this month in South Beach to raise awareness and research funding for epidermolysis bullosa (EB), a rare, life-threatening genetic disorder that the young Tottenville man has been battling since infancy. During the Plunge for John Hudson, set for March 23, participants will head into the frigid ocean off South Beach, raising funds to support the EB Research Partnership (EBRP), the largest non-profit organization dedicated to funding research aimed at treating and ultimately curing EB.
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