​5 for Good: Virtual polar plunge fights rare genetic condition

"I promised her that I would keep fighting for EB, for her friends,” says Katie Ramsey to WCVB TV Boston of her beautiful daughter Sophia, who sadly passed away after battling EB in May 2020 at just one-year-old. This year's annual Plunge For Elodie, a polar plunge benefiting EB research, is being held in Sophia's memory. Sophia's family started the organization Sophia's Hope to keep her memory alive and further EB research to find a cure. Along with local companies Trans National Group and Lookout Farm, Sophia's Hope has raised a $30,000 matching fund for the Plunge for Elodie.

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