6-Year-Old Enjoys Fundraiser for Her Rare Disease: I Wore 'a Unicorn Onesie and Butterfly Wings!'

Born with Recessive Dystrophic Epidermolysis Bullosa (EB), 6-year-old Elodie Kubik does not let the disease stop her from having fun. "I like playing with my friends," Elodie says. She adds, "We play kitchen and dress up. No one stares at me." When Elodie was diagnosed with EB as an infant, her parents were shocked. "It's such a rare disease. We hadn't really heard of it," Elodie's mother Emily says. "My close group of women who I went to high school with wanted to do something. And I really felt like, at that point, the thing that I most wanted was to cure this disease. So they said, 'We will help you do that' and came up with the idea for the plunge as a way to have a fundraiser that was super family friendly." Emily says the way the Plunge for Elodie has grown is unbelievable. "Our goal the first year we thought maybe we'll raise like $15,000, and here we are in year six about to hit the $2 million mark and it's just unbelievable. It's unbelievable." ​

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