A new platform for rare disease patients, powered by AWS

Working with Amazon Web Services, EB Research Partnership is leading the development of an innovative data platform to drive progress in finding treatments and cures for EB. The vision is to combine patient datasets, publications, and resources, which are broken up among various studies and softwares, in one platform with machine-learning and rapid analytic capabilities, giving scientists an invaluable tool to speed the pace of research. While EB is the main focus of the platform for now, EBRP hopes to scale the project for all rare diseases.

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