Accelerating Impact: EB Research Partnership is Empowering Rare Disease Patients to be in The Driver’s Seat

In a world where 95% of rare diseases lack FDA-approved treatments, organizations like EB Research Partnership (EBRP) are making a significant impact. With their groundbreaking work, EBRP not only provides hope to countless individuals and families affected by this devastating disease, but is also paving the way for progress across the wider rare disease health care space. Last year, EB Research won the 2022 Horizon Prize powered by MIT Solve and Horizon Therapeutics, which has been instrumental in propelling their mission to transform the lives of those living with Epidermolysis Bullosa (EB) and inspiring others to join the cause.

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