AN INNOVATIVE APPROACH TO FUNDING RARE DISEASE RESEARCH - HEATHER AND RYAN FULLMER, CO-FOUNDERS OF EB RESEARCH PARTNERSHIP

Tune in to learn how the “venture philanthropy” model EBRP uses differs from typical investing, and hear about important fundraising events for EB including Venture Into Cures hosted by Spiderman actor Tom Holland. And be sure to stay tuned to hear their advice to medical providers on the importance of building rapport with patient families, and taking an interdisciplinary approach to treating rare disorders.

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