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PRESS ARCHIVES

​Ed Sheeran, Selena Gomez Join Virtual Fundraiser Venture Into Cures Lineup

11/5/2021

 
EBRP is finalizing boldfaced name participants for its second annual Venture Into Cures virtual fundraiser. Scheduled for Nov. 18 and hosted by Tom Holland, the event raises money while shining a spotlight on individuals and families that are dealing with epidermolysis bullosa. Commonly called EB, it’s a rare genetic disorder (with no treatment or cure) that affects the skin, causing it to tear, blister and/or shear, which causes severe pain, disfigurement and wounds that sometimes never heal.
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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate