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Pearl Jam lead vocalist Eddie Vedder was at Alki Beach on Sunday, participating in a polar plunge event to benefit research for a life-threatening skin disorder that affects children. Longtime West Seattleites Eddie & Jill Vedder co-founded EB Research Partnership (EBRP) in 2010 along with a dedicated group of parents who set out to save their children’s lives. EB stands for Epidermolysis Bullosa, a rare genetic disorder that affects children from birth. People with EB lack critical proteins that bind the skin's two layers together, causing blisters, severe pain, and wounds that may never heal. The event is called the Plunge for Elodie, dedicated to 7-year-old Elodie Kubik, who lives with a severe form of EB. The first Plunge for Elodie took place in 2018 in Wellesley, Massachusetts. Now, it has events being held worldwide.
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