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PRESS ARCHIVES

Eddie Vedder surprises boy with life-changing genetic disorder at WE Day California

8/9/2019

 
WE Day, a celebration for youth that have made a positive impact on the world, featured EBRP Co-Founder Eddie Vedder surprising Eli and Lily Meyer, siblings who began the #ComeSayHi campaign. Eli is a 6-year-old with Junctional EB, and his older sister Lily was tired of the stares from strangers he received out in public. The siblings encourage people to "Come Say Hi" rather than stare at others who may be different.
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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate