Fundraiser for genetic disorder EB held at Phoenecia restaurant

Well known West Seattle philanthropist Jill Vedder is a passionate supporter for research into a relatively rare genetic disorder, Epidermolysis Bullosa or EB. She brought that passion and her two daughters to a fundraising event that was held Sunday April 2 at the Phoenecia Restaurant in the Junction. The event had participants take ice bath plunges (up to 3 minutes long) just outside the restaurant. EB patient Patterson from Seattle was in attendance too, even bravely taking the plunge himself. Both Jill and Eddie Vedder (Pearl Jam), long time West Seattle residents got involved with the cause after Jill's childhood friend had a son who was born with EB.  Jill said, "My oldest childhood friend, Ryan Fullmer, he had a son, Mikey, born with EB. We got together to see what we could do. We started Heal EB, and then joined with another family and started the EB Research partnership (EBRP)."

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