HOW TO LIVE WITH THE "WORST DISEASE" NO ONE KNOWS ABOUT? THE WAY BROOKS KENDRICK DOES

Both 4-year-old Brooks and his mother Annie Kendrick were born with large swatches of missing skin because of a single gene mutation called epidermolysis bullosa. They lack a protein that binds the skins’ top two layers together. Individuals with the most severe cases may not live to age 30. Others have a propensity for severe pain, disfigurement and wounds that may never heal... “I never dreamed of a cure,” Annie said. “It was just not an option. But I can honestly say now it’s not if but when.” ​

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