Hundreds brave the cold for the seventh annual Plunge for Elodie

Hundreds of people braved the cold and wind in Wellesley on Saturday for the seventh annual Plunge for Elodie, a fundraising event dedicated to raising awareness and funds for research into Epidermolysis Bullosa. The event is named after 7-year-old Elodie Kubik, who was born with EB, a rare genetic skin disorder. "It's really, really incredible. Beyond my wildest dreams," said Emily Kubik, Elodie's mother. "There was one year we had to cut through the ice and not gonna lie I think that year was warmer," Emily Kubik said. "So this will be an adventure as it always is." Among the crowd was NewsCenter 5's Erika Tarantal, who was honored for her work promoting the important cause over the years. "They've inspired a global movement and now there are two treatments for EB, not a cure yet," Tarantal said. "Elodie is on one of them, just the fact they've raised this much money, they are just the epitome of friendship, and they give true hope to this EB community."

read more