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PRESS ARCHIVES

Jill and Eddie Vedder gathered good people for a good cause on Alki Beach

4/21/2024

 
Two of West Seattle's most well known residents, Jill and Eddie Vedder came to Alki Beach on April 21 along with a large group of donors to Plunge for Elodie. The plunge was in support of research for treatments for Epidermolysis Bullosa, a genetic skin disorder.Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off, leading to severe pain, disfigurement, and internal and external wounds that may never heal. Plunges such as this now take place all over the world. To date they've raised 2.5 million dollars locally and this year alone they are at $450,000. The first Seattle plunge was last year but Jill said, "This is our first big year where we decided to really rally the troops and bring out our community to support us." ​
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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate