Luis Ortiz named ambassador for EB Research Partnership

EB Research Partnership presented heavyweight boxer Luis "King Kong" Ortiz was with an EB Ambassador Award on Rare Disease Day during the press conference in advance of his upcoming match on Saturday. The award recognizes Ortiz's leadership in joining us to accelerate treatments and cures for EB, not only for his daughter, Lismercedes, who lives with the disease, but the thousands worldwide like her. ​

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