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PRESS ARCHIVES

Monroe couple fights EB to keep daughter Sophia’s memory alive

3/14/2021

 
K​atie and Tim Ramsey are fighting for a cure for EB in memory of their daughter, Sophia, who unfortunately passed away from complications of Junctional EB last May at just one-year-old. The Ramsey's started Sophia's Hope, an organization dedicated to keeping Sophia's legacy alive by supporting EB research, and are supporting the Plunge For Elodie, held in Sophia's honor this year.
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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate