Partnership puts spotlight on rare disease

Adelaide is using its upcoming home match as another opportunity to raise awareness and money for a life-threatening and rare disease affecting children from birth. For the second straight year, the Club is linking with international charity EB Research Partnership to help find a cure for Epidermolysis Bullosa, or EB as it is most commonly known. Crows CEO Tim Silvers said the Club’s players, coaches and staff found inspiration in the courage shown by children suffering from EB. “People impacted by this disease, as well as their loved ones, struggle through adversity on a daily basis,” Silvers said. “Unfortunately, there is no cure and we want to do our part to help find one, and we admire the efforts and progress being made by the EB Research Partnership here and abroad.”

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