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Longtime West Seattleites Eddie & Jill Vedder co-founded EB Research Partnership (EBRP) in 2010 along with a dedicated group of parents set out to save their children’s lives. Their community will be rallying around Team Vedder by plunging into the cold waters of Puget Sound off Alki Beach on Sunday, April 21st at 10 am as part of a national campaign to raise money to treat and cure Epidermolysis Bullosa (EB), a family of painful and life-threatening rare genetic disorders that affect the body’s largest organ: the skin. This year, Team Vedder will be plunging Alki Beach with a local EB patient, Patterson, a young boy who, like Elodie, suffers from a severe form of EB. Patterson endures daily bandage changes that can be grueling and take time away from other activities. EB is challenging, as it affects so much more than just his skin. It is a constant battle, both physically and emotionally, as he navigates through pain, itch, inflammation, and wound care. But amidst the challenges, there is a powerful force that emerges – strength and resilience.
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