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PRESS ARCHIVES

Polar plunge raises thousands for John Hudson Dilgen, Staten Islander with rare skin disease

3/23/2025

 
Dozens of participants — both two-legged and four-legged alike — partook in a polar plunge fundraiser in the waters off South Beach Sunday in the name of John Hudson Dilgen. Dilgen, a 22-year-old Tottenville resident, has been battling epidermolysis bullosa (EB), a rare, life-threatening genetic disorder that causes skin to blister and tear at the slightest touch, since infancy.
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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate