Rare Diseases: Local community rallies around 6-year-old Elodie

The Plunge for Elodie is an annual fundraiser benefiting the EB Research Partnership. The organization is the largest global organization dedicated to funding research to treat and cure Epidermolysis Bullosa (EB). A group of friends from Wellesley started the Plunge for Elodie in honor of Elodie Kubik, the daughter of Wellesley High graduate Emily Kubik. After six years, the plunge has raised nearly $2 million to fight EB. Reporter and Producer Erika Tarantal shines a light on the Kubik family, the challenges of navigating a rare skin disease, and the progress that the Plunge has made to fight EB. ​

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