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PRESS ARCHIVES

Saving the 'Butterfly Children:' Gene Therapy Helps Heal Deadly Blistering Condition

3/29/2022

 
"Many people forget your skin is your largest organ. So when your skin doesn't function like people with healthy skin, every aspect of your life is impacted," says EBRP CEO Michael Hund to HealthDay. This article reports on the potential for Krystal Biotech's Vyjuvek, a topical gene therapy, to become the first FDA-approved treatment for individuals with Epidermolysis Bullosa (EB).
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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate