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PRESS ARCHIVES

Simply new england: plunge for elodie

3/29/2023

 
The 6th Annual Plunge for Elodie kicked off plunges all around the world this weekend to raise awareness for the EB Research Partnership. Plunge for Elodie organizers and EBRP CEO discuss EB, the first Plunge, and the amazing process that this event has seen. The first Plunge for Elodie, named after 6-year-old Elodie who lives with EB, was started by a group of Elodie's mom's friends who wanted to support her and her family. When asked what they could do to help, she told them, "help me cure this disease." 6 years later, the Plunge has grown into an international movement, with 10 satellite plunges around the globe this year, and almost $2 million raised to fund critical EB research via the EB Research Partnership. ​
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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate