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PRESS ARCHIVES

Taking the ‘Plunge for Elodie’ Sunday in Old Greenwich

3/31/2023

 
This Sunday from 9:00 to 11:00am, the EB Research Partnership will hold the 6th annual Plunge For Elodie. EB is short for Epidermolysis Bullosa. In Greenwich, Elodie, who has EB, is a 6 year old student at Riverside School. Her rare disease carries a life expectancy of 30 years, which her family is determined to push out. Elodie’s mother, Emily Kubik, said the entire Riverside School community has mobilized for this event. “Each grade level has a fundraising team,” she said. “The student council is selling bracelets and the riverside rangers are helping to set up and clean up and make sure everything goes smoothly.” On Sunday, teachers and administrators will be plunging alongside students and parents! “We are approaching $2M raised since the event started six years ago,” Emily added. "It is without a doubt one of most successful rare disease fundraisers ever. It is a celebration for the community who has been all-in on supporting Elodie and us since day 1."
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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate