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PRESS ARCHIVES

Warm hearts triumph over cold water during plunge to benefit 7-year-old Wellesley girl

3/30/2024

 
There was a bitter chill in the air. The howling wind only added more cold. But the conditions did not prevent dozens of Wellesley High School athletes from diving into the frigid water of Morses Pond on Saturday morning. This weekend marked the seventh annual “Plunge for Elodie” event, which raises money for awareness in the fight against the disease known as Epidermolysis Bullosa. The fundraiser and the event were designed for Elodie Kubik, a 7-year-old Wellesley child battling the rare genetic skin illness. Kubik’s specific form of the disease impacts about 1,200 people nationally. Elodie’s mother, Emily, is a former Wellesley lacrosse and track athlete. She smiled as a growing crowd of a couple hundred assembled around the town landmark. “It is amazing,” Emily Kubik said. “I love everyone here so much. I’ve been blown away. Managing this disease is so hard, but there have been some findings. Seeing all these people, who have come out here to support us, some of whom I don’t even know, has been a huge silver lining for my family.”
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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate