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PRESS ARCHIVES

Wellesley's Plunge for Elodie has become global cause to fight rare skin disorder

3/18/2024

 
It may not be bathing suit weather quite yet, but don't tell that to those who plan to gather on Saturday, March 30, at Morses Pond. Dozens are expected for the 7th annual Plunge for Elodie, which is in support of 7-year-old Elodie Kubik, who is battling a life-threatening rare genetic skin disorder called epidermolysis bullosa (EB). Money raised from those who plunge into freezing water benefit the EB Research Partnership. The event also raises awareness of EB. “EB is a daily challenge,” said Elodie’s mother, Emily Kubik, a Wellesley native. “The hardest part is the chronic and acute pain that she endures. What people may not realize is that this disease affects every part of the body, not just the skin. Elodie's activity level is limited, the nightly bandaging process is grueling, and there are constant complications and doctor's appointments to attend.”
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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate