quality of life

At EBRP, quality of life is an important priority and written into our mission statement. One way we are attempting to fulfill this mission is to give grants that support projects that help manage the expression of EB and limit the level of severity that places restrictions on activities for individuals with EB.

• Protein replacement therapies for DEB and JEB
• Studies to advance an “internal protein production” project via ISP cell product​
• Studies on the production of skin substitutes from self-correcting skin cells from DEB patient (Revertant Mosaicism)