RARE DISEASE DAY
February 28th is Rare Disease Day, a day to raise awareness about rare diseases like EB and their impact on patients' lives. The research we fund at EBRP not only has the potential to treat and cure EB, but provides pathways to cures for the 7,000 other rare diseases that affect over 400 million people worldwide. This February, help us reach out $10,000 goal to further cutting-edge research to #healEB and many others.