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Be Part of the Story

Venture
Into Cures

Where Stories Take Flight


November 11, 2026

6:30 PM – 10:30 PM ET

Pier Sixty  |  New York City

To benefit EB Research Partnership

Sponsorships & Tickets View the sponsorship deck


Until the Night Takes Flight
--
Days
--
Hours
--
Minutes
--
Seconds

The Evening at a Glance

Date
November 11, 2026
Time
6:30 – 10:30 PM ET
Location
Pier Sixty
New York City
Benefiting
EB Research Partnership
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Still Climbing
Our story is still being written.
Families are still waiting for more treatments and, ultimately, a cure for Epidermolysis Bullosa. One night can help the next chapter take flight.
16
Years accelerating EB research
189
Research projects funded
25×
Growth in EB clinical trials since 2010
Donate Now

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The Experience

Guided by our theme, Where Stories Take Flight, the evening unfolds through the voices of the EB community, live music, performances, and visual art. And we are just getting started. A lot of surprises are still waiting in the wings, and we will be revealing them in the months to come.

Special Guests · Live Performances · Stories from the EB Community Revealed soon
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Sponsorships

Become part of the story. Our sponsorship levels offer a meaningful way to partner with EB Research Partnership and help bring this evening to life. View the deck for full benefits, then choose your level to register.

Become a Sponsor View Sponsorship Deck

Partners in Flight

Meet the sponsors and partners helping this story soar. Their generosity fuels the research, new treatments, and hope carrying families with EB forward. Want to join them? Explore the sponsorship options just above.

Presenting Sponsor
Become a Presenting Sponsor
Titanium Sponsors
Become a Titanium Sponsor
Platinum Sponsors
Become a Platinum Sponsor
Gold Sponsors
Become a Gold Sponsor
Silver Sponsors
Dusty and Mathew Lembrich
Jenny Gallagher
Become a Silver Sponsor
Bronze Sponsors
ChiesiChiesi
McKenzie Family / Pursuit for PattersonMcKenzie Family / Pursuit for Patterson
Become a Bronze Sponsor
Champion Sponsors
Clayton Polowy
Children’s Hospital of Colorado
Become a Champion Sponsor

Plan Your Stay

Traveling in for the evening? We have reserved room blocks at two hotels near Pier Sixty. Book by the group-rate deadlines below to secure the discounted rate.

Innside by Melia exterior

Innside by Meliá New York Nomad

132 W 27th St, New York, NY 10001

Rate$299 / night
Check-in3:00 PM
Check-out12:00 PM
Reserve Your Room

Book by Friday, October 9, 2026 for the group rate.

ADA Roll-in shower or bathtub rooms are available upon request. Please email [email protected] (cc [email protected]) prior to booking to confirm availability.

DoubleTree by Hilton New York City Chelsea exterior

DoubleTree by Hilton New York City, Chelsea

128 West 29th Street, New York, NY 10001

Rate$305 / night
Check-in4:00 PM
Check-out11:00 AM
Reserve Your Room

Book by Monday, September 28, 2026 for the group rate.

ADA Roll-in shower accessible rooms are available through the link above. All rooms contain bathtubs.


EB families are at the heart of Venture Into Cures and are always our honored guests.

If you are part of the EB community, there is no expectation to sponsor or purchase a ticket. Your seats are complimentary, and our team would be honored to welcome you.

Please reach out to [email protected], and we’ll take care of the rest.


Be the First to Know

New performances, special guests, and reveals are on the way. Sign up for updates and be the first to know as Venture Into Cures takes shape.


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COPYRIGHT @2025 EB RESEARCH PARTNERSHIP. ALL RIGHTS RESERVED. EB RESEARCH PARTNERSHIP IS A 501(C)(3) NON PROFIT.

  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Create an Event
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board & Advisors
      • Staff
  • Donate