Venture
Into Cures
Where Stories Take Flight
November 11, 2026
6:30 PM – 10:30 PM ET
Pier Sixty | New York City
To benefit EB Research Partnership
The Evening at a Glance
New York City
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The ExperienceGuided by our theme, Where Stories Take Flight, the evening unfolds through the voices of the EB community, live music, performances, and visual art. And we are just getting started. A lot of surprises are still waiting in the wings, and we will be revealing them in the months to come.
Special Guests · Live Performances · Stories from the EB Community
Revealed soon
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SponsorshipsBecome part of the story. Our sponsorship levels offer a meaningful way to partner with EB Research Partnership and help bring this evening to life. View the deck for full benefits, then choose your level to register. |
Partners in Flight
Meet the sponsors and partners helping this story soar. Their generosity fuels the research, new treatments, and hope carrying families with EB forward. Want to join them? Explore the sponsorship options just above.
Plan Your Stay
Traveling in for the evening? We have reserved room blocks at two hotels near Pier Sixty. Book by the group-rate deadlines below to secure the discounted rate.
Innside by Meliá New York Nomad
132 W 27th St, New York, NY 10001
Book by Friday, October 9, 2026 for the group rate.
ADA Roll-in shower or bathtub rooms are available upon request. Please email [email protected] (cc [email protected]) prior to booking to confirm availability.
DoubleTree by Hilton New York City, Chelsea
128 West 29th Street, New York, NY 10001
Book by Monday, September 28, 2026 for the group rate.
ADA Roll-in shower accessible rooms are available through the link above. All rooms contain bathtubs.
EB families are at the heart of Venture Into Cures and are always our honored guests.
If you are part of the EB community, there is no expectation to sponsor or purchase a ticket. Your seats are complimentary, and our team would be honored to welcome you.
Please reach out to [email protected], and we’ll take care of the rest.
Be the First to Know
New performances, special guests, and reveals are on the way. Sign up for updates and be the first to know as Venture Into Cures takes shape.

