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Beauty Is Not Rare

A campaign by Lucy Beall, Olivia Vedder, and EB Research Partnership

everyone is beautiful -

- ​whether you have a visible disease, like Epidermolysis Bullosa (EB), or are unapologetically showing your scars, acne, or individual insecurities. The standard society holds us to, especially in the day of social media, proves extremely harmful. We want to flip the script - transforming social media into a positive space, and validate the fact that #BeautyIsNotRare.

Get involved -

by posting a photo of yourself on Instagram that makes you feel beautiful. All are welcome! Tag @ebresearch for a chance to be featured and to spread EB awareness. Keep the campaign going by nominating 3 friends to join us. Need some inspiration? Check out the posts below.

Lucy beall

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Campaign Creator
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Woman with EB. Advocate.
Shot by Brittney Christie | @brittneychristie
View Lucy's Post

olivia ​vedder

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Campaign Creator
​EBRP Ambassador. Activist.
Shot by Brittney Christie | @brittneychristie
View Olivia's Post

#Beautyisnotrare on Instagram

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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials
    • Community Council
    • Apply for a Grant
  • Get Involved
    • Donate
    • Sponsor
    • EB Active
    • Events >
      • Venture Into Cures
    • The Effect
    • Shop
    • Accelerator Fund
  • Media
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlight
    • Leadership >
      • Board of Directors
      • Staff
      • Founders
  • Donate