AVAILABLE TREATMENTS

VYJUVEK

FILSUVEZ

For EB families

EBADVOCATE.ORG

CARING FOR NEWBORNS WITH EB

READING CLINICAL PUBLICATIONS

NIAMS.NIH.GOV

AAD.ORG

EPIDERMOLYSISBULLOSANEWS.COM

MAYOCLINIC.ORG

​RAREDISEASES.ORG

CLINICALTRIALS.EU

​DEBRA-INTERNATIONAL.ORG

MED.STANFORD.EDU​

for fundraisers

EBRP IMPACT BOOKLET

EBRP PRINTABLE TRI-FOLD

EBRP IMPACT REPORT 2023

EBRP IMPACT REPORT 2022

Learn more

What is EB?

Life with EB

Funded Projects

HOST A FUNDRAISER