EB Research Partnership
  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate

Resources

AVAILABLE TREATMENTS

Picture
VYJUVEK
Picture
FILSUVEZ
Picture
ZEVASKYN

For EB families

Picture
EBADVOCATE.ORG
Picture
CARING FOR NEWBORNS WITH EB
Picture
READING CLINICAL PUBLICATIONS
Picture
NIAMS.NIH.GOV
Picture
AAD.ORG
Picture
EPIDERMOLYSISBULLOSANEWS.COM
Picture
MAYOCLINIC.ORG
Picture
​RAREDISEASES.ORG
Picture
CLINICALTRIALS.EU
Picture
​DEBRA-INTERNATIONAL.ORG
Picture
MED.STANFORD.EDU​
Picture
MULTIDISCIPLINARY MANAGEMENT OF EPIDERMOLYSIS BULLOSA

epidermolysis bullosa news

EBRP has partnered with Bionews to feature the Epidermolysis Bullosa News news feed on our website. Epidermolysis Bullosa News provides clear, reliable news, research updates, and real-world perspectives to help people living with epidermolysis bullosa and their caregivers feel more informed, confident, and supported throughout their care journey. This information is not meant to replace or provide medical advice.

for fundraisers

Picture
EBRP IMPACT BOOKLET
Picture
EBRP PRINTABLE TRI-FOLD
Picture
EBRP IMPACT REPORT 2023
Picture
EBRP IMPACT REPORT 2022

Learn more

What is EB?
Life with EB
Funded Projects
HOST A FUNDRAISER

EB Research Partnership

244 Madison Ave Ste 104
New York, NY 10016 
[email protected]
646-844-0902
Careers
​
Donor Privacy Policy

Curator Privacy Policy

Curator Terms of Use
Donate

Contact Us
​

​Our Mission

​Shop

Press
Picture
Picture

COPYRIGHT @2025 EB RESEARCH PARTNERSHIP. ALL RIGHTS RESERVED. EB RESEARCH PARTNERSHIP IS A 501(C)(3) NON PROFIT.

  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Apply for a Grant
  • Get Involved
    • Donate
    • Ways to Give
    • The Effect
    • Sponsor
    • Events
    • Town Halls
    • Shop
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate