FAMILY AND CAREGIVER RESOURCES
A VISUAL GUIDE TO UNDERSTANDING EBINFORMATION FOR PEOPLE WITH EB AND THEIR FAMILIES
Newborns with EBPRODUCTS AND RESOURCES
FOR CARE OF A NEWBORN 
www.ebnurse.orgINFORMATION FOR FAMILIES,
FRIENDS & PATIENTS |
one day every dayA LOOK INTO THE LIVES OF INDIVIDUALS
WITH EB AND THEIR CARETAKERS 
reading clinical publicationsHOW TO READ AND UNDERSTAND
CLINICAL AND RESEARCH PUBLICATIONS |