our founders

​EB Research Partnership (EBRP) was founded in 2010 by two families that shared a common goal: find a cure for their sons and all others that suffer from Epidermolysis Bullosa (EB). Joined by close friends Jill and Eddie Vedder of Pearl Jam, EBRP has become the largest global organization funding research to find a cure for EB.

the vedder family

​Jill and Eddie knew they had to take action when Jill's childhood friend, EBRP Co-Founder Ryan Fullmer, had a son born with EB. They combined their commitment to catalyzing global change with Eddie’s powerful platform as the singer-songwriter for one of the world’s biggest rock bands: Pearl Jam. Together, they are not only co-founders of EBRP but leading ambassadors sharing the mission of curing EB with the world.

The Vedders began the Cause The Wave movement to heal EB. Click here to learn more.

The Silver Family

"We have made it our mission to support the brilliant research focused on finding a cure for EB that will give Jackson, and others afflicted with EB, a chance at living pain-free lives," write Jamie and Alex Silver, EBRP Co-Founders and parents to Jackson, who lives with EB. The Silvers started Jackson Gabriel Silver Foundation, an organization in New York dedicated to funding EB research before joining forces with the Fullmer Family to form EBRP. 

To learn more about the Silver's commitment to healing EB, click to watch their story.

The Fullmer Family

"Any parent’s nightmare is to see their child in pain. EB is our nightmare," write Heather and Ryan Fullmer, EBRP Co-Founders and parents to Mikey, who lives with EB. The Fullmers started Heal EB, an organization in California dedicated to funding EB research before joining forces with the like-minded Silver Family to form EBRP. "Our dream is to see him experience simple freedoms without consequences. With your help, we will find a cure."

To see what a day in the Fullmers' life is like, click to watch Mikey's World.