When EBRP makes a grant to a research project, we retain the added upside of generating a recurring donation stream if the therapy or product is commercially successful, then use this revenue to fund additional EB research. 

​Historically, non-profits have passed these financial benefits to universities and commercial companies. Instead, EBRP participates in them, making philanthropy more sustainable. Through partnerships with the University of Minnesota and Stanford University, EBRP pioneered the venture agreements that we now use for all grant-making.

Click the button below to read a case study on our model from Global Genes:

Global Genes Case Study