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Scientific Advisory Board

The Board of EBRP is advised by a Scientific Advisory Board (SAB) made up of specialists in the field of genetics, hematology, protein therapy, and dermatology. The SAB offers insight and guidance to applicants, fostering an environment that encourages research, collaboration, and ultimately accelerates progress towards a cure for EB. 

Anne Lucky , M.D.

Scientific Advisory Board Chair
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​Medical Director of Epidermolysis Bullosa Center of Cincinnati Children's Hospital

Greg Barsh, M.D., Ph.D. 

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Head of the Barsh Lab at the Hudson Alpha Institute for Biotechnology

Suephy Chen M.D., MS

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Chair of Department of Dermatology at Duke University School of Medicine

Alain Hovnanian, M.D., Ph.D.

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Professor of Medical Genetics and Director of an INSERM Department at Necker Enfants Malades Hospital

Christopher Sloey

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Senior Scientist at Amgen Inc. working in Drug Product Technologies 

Amy Paller, M.D.

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Chair of Department of Dermatology at Northwestern University and Chair of Skin Disease Research Center and Director of Pediatric Dermatology Clinical Research
Please click here to see full bios of the Scientific Advisory Board members. 

The application deadline for the next funding cycle is July 15, 2019 at 11:59 PM EST. EBRP expects the SAB to have completed the evaluation and scoring of the submitted LOIs by the end of September 2019, after which applicants will be contacted with the results.
More information on the grant application process can be found on the Applying for a Grant page.

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  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials
    • Community Council
    • Apply for a Grant
  • Get Involved
    • Donate
    • Sponsor
    • EB Active
    • Events >
      • Venture Into Cures
    • The Effect
    • Shop
    • Accelerator Fund
  • Media
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlight
    • Leadership >
      • Board of Directors
      • Staff
      • Founders
  • Donate