our progress

Over the last decade, EBRP has made remarkable strides, including helping to accelerate the first three FDA-approved EB treatments in the past two years alone. Two of these treatments were directly funded by EBRP under our Venture Philanthropy model. 

building momentum

​Since our founding, we have funded 160 research projects laser-focused on bringing life-saving therapies and cures to the EB community. Our work has transformed the clinical trial landscape from just 2 clinical trials in EB to over 50 today, an over 25x increase.

funded ​Research highlights

"Modeling and Targeting RDEB with Human Skin Organoids-on-Chip"

"Developing Ex-vivo and In-vivo Base and Prime Editing Strategies to Treat Recessive Dystrophic Epidermolysis Bullosa"

"Utilizing SRI-41315 Alone and in Combination with Gentamicin to Promote Readthrough in Patients with RDEB and JEB"

"Nonsense readthrough using gentamicin or ELX-02 in combination with potentiator compounds for the treatment of Recessive Dystrophic Epidermolysis Bullosa and Junctional Epidermolysis Bullosa"

"Validating New Anti-Cancer Targets for Dystrophic Epidermolysis Bullosa"

"Phase 2 Trial of a Neurokinin-1 Receptor Antagonist for the Treatment of Chronic Itch in Epidermolysis Bullosa Patients"

EXPLORE MORE PROJECTS

You can search and explore the EBRP Research Database below to learn more about the specific projects we've funded thanks to your generous donations.

EBRP'S RESEARCH DATABASE

21 INSTITUTIONS, ONE FOCUS: CURING EB
​Collaboration is central to our model. The EB Clinical Research Consortium (EBCRC) allows each research team to benefit from the others, accelerating progress to heal EB.

Our Collaborations

DRIVING RESULTS FOR PATIENTS.
We find the most promising research projects to fund. But we don't just sign a check and hope for the best. Our innovative Venture Into Cures system ensures maximum impact for the EB community.

Our model

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MAKE A DONATION

Thanks to EBRP's pioneering Venture Philanthropy model, every donation has the potential to grow to multiples of its original value.
Donate today to fund the science that will find the cure.

DONATE