Since our founding in 2010, we have funded 120 research projects laser-focused on bringing life-saving therapies to the EB community. Our work has transformed the clinical trial landscape from just 2 trials in EB to 39 today, an almost 20x increase.

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2022

19 PROJECTS APPROVED
​$6.6M AWARDED
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2021

13 PROJECTS APPROVED
$5.2M AWARDED

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2019

​21 PROJECTS APPROVED
$7.5M AWARDED

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2020

17 PROJECTS APPROVED
$7.2M AWARDED

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2018

17 PROJECTS APPROVED
$11M AWARDED

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21 INSTITUTIONS, ONE FOCUS: CURING EB
​Collaboration is central to our model. The EB Clinical Research Consortium (EBCRC) allows each research team to benefit from the others, accelerating progress to heal EB.

Our Collaborations

DRIVING RESULTS FOR PATIENTS.
We find the most promising research projects to fund. But we don't just sign a check and hope for the best. Our innovative Venture Into Cures system ensures maximum impact for the EB community.

Our model

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