EB Research Partnership
  • Epidermolysis Bullosa
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EBRP funds research to discover meaningful treatments and, ultimately, a cure for EB.
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Over the last decade, EBRP has made remarkable strides, including helping to accelerate the first two EB treatments FDA approved in 2023. 
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​Since our founding, we have funded 140 research projects laser-focused on bringing life-saving therapies and cures to the EB community. Our work has transformed the clinical trial landscape from just 2 clinical trials in EB to over 50 today, an over 20x increase.
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​Research highlights

"Adapting the iPS Cell-Based Therapy for RDEB to an Automated Platform to Facilitate Clinical Translation"
​"Suppressing the Itch of Dystrophic Epidermolysis Bullosa"​
"Development of a Novel Ophthalmic Solution to Treat Ocular Manifestations of RDEB"
2024

18 PROJECTS APPROVED
​$5.6M AWARDED
VIEW PROJECTS
2023

18 PROJECTS APPROVED
​$5.9M AWARDED
​
VIEW PROJECTS
2022

19 PROJECTS APPROVED
​$6.6M AWARDED
​
VIEW PROJECTS
2021

13 PROJECTS APPROVED
$5.2M AWARDED


VIEW PROJECTS

2019

​21 PROJECTS APPROVED
$7.5M AWARDED
view projects
2020

17 PROJECTS APPROVED
$7.2M AWARDED
view projects

2018

17 PROJECTS APPROVED
$11M AWARDED
view projects
21 INSTITUTIONS, ONE FOCUS: CURING EB
​Collaboration is central to our model. The EB Clinical Research Consortium (EBCRC) allows each research team to benefit from the others, accelerating progress to heal EB.
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Our Collaborations
DRIVING RESULTS FOR PATIENTS.
We find the most promising research projects to fund. But we don't just sign a check and hope for the best. Our innovative Venture Into Cures system ensures maximum impact for the EB community.
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Our model


EB Research Partnership

244 Madison Ave Ste 104
New York, NY 10016 
[email protected]
646-844-0902
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COPYRIGHT @2025 EB RESEARCH PARTNERSHIP. ALL RIGHTS RESERVED. EB RESEARCH PARTNERSHIP IS A 501(C)(3) NON PROFIT.

  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Town Halls
    • Apply for a Grant
  • Get Involved
    • Donate
    • Sponsor
    • EB Active
    • Events
    • The Effect
    • Shop
    • Give Cryptocurrency
    • Give Stocks
    • Give through Donor Advised Funds (DAF)
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate