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Donor Privacy Policy

Updated September 6, 2018

As a donor, you submit personal information to EB Research Partnership and consent to the terms and conditions of this policy. 

Personal information is information that may be used to identify you, such as your name, address, email address, and telephone number. This policy applies to all donor personal information received by EB Research Partnership. We collect and store your personal information when you make a contribution on any platform, whether online or offline. We also may store your personal information when you register for an event, sign up to receive communications, or when you otherwise contact us. EB Research Partnership uses industry-standard SSL Secure Socket technology to protect donor's transactions.

EB Research Partnership will not sell, share, or trade our donors’ personal information with other organizations. We will not send mailings to our donors on behalf of other organizations without your permission. We will collect payment information necessary to process donations and event registrations. In the event that your donation is processed through a third-party service, your personal information will be only be used for purposes of processing your contribution. 

We reserve the right to update and/or modify this Donor Privacy Policy at any time, without prior notice.

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244 Madison Ave Ste 104
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646-844-0902
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COPYRIGHT @2025 EB RESEARCH PARTNERSHIP. ALL RIGHTS RESERVED. EB RESEARCH PARTNERSHIP IS A 501(C)(3) NON PROFIT.

  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Town Halls
    • Apply for a Grant
  • Get Involved
    • Donate
    • Sponsor
    • EB Active
    • Events
    • The Effect
    • Shop
    • Give Cryptocurrency
    • Give Stocks
    • Give through Donor Advised Funds (DAF)
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate