mICHAEL hUND, mba

CHIEF EXECUTIVE OFFICER

Michael joined EBRP as the Executive Director in 2017 and became CEO in 2019. Michael previously served as the Director of Development for the Multiple Myeloma Research Foundation, leading their successful $100 million Curing Cancer Now campaign driving achievement of the largest longitudinal genomic dataset in cancer, an end-to-end Precision Medicine Model, a 25 member consortium of leading academic medical centers, 10 approved treatments in just over a decade, and the tripling of patient life expectancy. Previously, Michael spent over a decade in leadership at the actor and philanthropist Paul Newman’s Hole in the Wall Gang Fund, working on behalf of children and their families battling cancer and other life-threatening illness.
 
Michael received his Master’s in Business Administration (MBA) from Yale University, CORe credential from Harvard Business School, and an undergraduate degree in Philosophy from the University of Kansas. Michael has spent his career dedicated to transforming healthcare and also sits on the boards of numerous non-profit organizations. He lives in Connecticut with his wife Sarah and three daughters.

cHRISTINE LUNNIE

CONTROLLER

Christine has more than 15 years of experience working in the nonprofit sector. She was the Controller for The Children’s Aid Society and Planned Parenthood of NYC for several years as well as a Manager at NYU focusing on process documentation and improvement. Before then, she was an auditor for a mid-sized public accounting firm specializing in nonprofit auditing. Christine holds a Bachelor of Science, Business Administration and Accounting from Adelphi University.

stephanie Ishoo

DEVELOPMENT MANAGER

Stephanie joined EBRP in 2017 as Development Associate and became Development Manager in 2018. She graduated with honors from George Washington University with a Bachelor of Science in Biological Sciences and a minor in Public Health. While at GW, Stephanie acted as Executive Vice President of Alpha Delta Pi, overseeing chapter operations and charity initiatives for their nationwide partnership with the Ronald McDonald House. Additionally, as a member of the Assyrian community, Stephanie mentors youth through the college admissions process.  

alexandra blumberg

DEVELOPMENT ASSOCIATE

Alexandra joined EBRP in 2019 as Development Associate. She previously served as an AmeriCorps Member at City Year New York working in underserved schools in New York City and later as a Care Navigator at SKIP of New York where she coordinated services for medically fragile children. Alexandra graduated with honors from University of Delaware with a Bachelor of Science in Human Services with a focus in Administration and Family Policy. While at the University of Delaware, Alexandra participated in a service learning trip in Barbados and was a member of Alpha Epsilon Phi, through which she participated and helped fundraise for their annual Dance Marathon for pediatric cancer, UDance.

michelle hall

SENIOR ACCOUNTANT

Michelle works as the Senior Accountant for EB Research Partnership and as a global ambassador for the EB community. She has received worldwide recognition for a short film on her life with EB called “This Is Michelle.” For the last 10 years, Michelle has mentored youth with EB and various skin conditions as a volunteer counselor at various camps across the United States. Living with Recessive Dystrophic Epidermolysis Bullosa (RDEB), Michelle uses her personal experiences and medical challenges to help others, especially those within the EB community. She serves on patient advisory boards for biotechnology companies working on clinical trials in EB and has spoken directly with the FDA at several conferences. Michelle is a passionate and inspiring advocate providing a voice for all those who battle rare disease.