mICHAEL hUND, mba

CHIEF EXECUTIVE OFFICER

Michael joined EBRP as the Executive Director in 2017 and became CEO in 2019. Michael previously served as the Director of Development for the Multiple Myeloma Research Foundation, leading their successful $100 million Curing Cancer Now campaign driving achievement of the largest longitudinal genomic dataset in cancer, an end-to-end Precision Medicine Model, a 25 member consortium of leading academic medical centers, 10 approved treatments in just over a decade, and the tripling of patient life expectancy. Previously, Michael spent over a decade in leadership at the actor and philanthropist Paul Newman’s Hole in the Wall Gang Fund, working on behalf of children and their families battling cancer and other life-threatening illness.
 
Michael received his Master’s in Business Administration (MBA) from Yale University, CORe credential from Harvard Business School, and an undergraduate degree in Philosophy from the University of Kansas. Michael has spent his career dedicated to transforming healthcare and also sits on the boards of numerous non-profit organizations. He lives in Connecticut with his wife Sarah and three daughters.

Craig fox, mba

CONTROLLER

Craig Fox is a highly qualified, technically competent and knowledgeable accounting professional.  Craig started his career in the financial services industry working in various senior accounting, finance, marketing, and strategic planning and analysis positions at Fidelity Investments, Charles Schwab, and Wells Fargo.  After working for a number of industry leaders in the financial services industry Craig started and ran a successful accounting and financial services consulting business in the San Francisco Bay Area for 20 years with a focus on the nonprofit sector. 
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Craig received his Master’s in Business Administration (MBA) from Babson College, and an undergraduate degree in Finance from the University of Connecticut. Craig now lives in New York where he continues to work in the nonprofit sector.

stephanie Ishoo

DIRECTOR OF COMMUNICATIONS

Stephanie joined EBRP in 2017 and began her role as Director of Communications in 2019. She graduated with honors from George Washington University with a Bachelor of Science in Biological Sciences and a minor in Public Health. While at GW, Stephanie acted as Executive Vice President of Alpha Delta Pi, overseeing chapter operations and charity initiatives for their nationwide partnership with the Ronald McDonald House. Additionally, as a member of the Assyrian community, Stephanie mentors youth through the college admissions process.  

michelle hall

SENIOR ACCOUNTANT

Michelle works as the Senior Accountant for EB Research Partnership and as a global ambassador for the EB community. She has received worldwide recognition for a short film on her life with EB called “This Is Michelle.” For the last 10 years, Michelle has mentored youth with EB and various skin conditions as a volunteer counselor at various camps across the United States. Living with Recessive Dystrophic Epidermolysis Bullosa (RDEB), Michelle uses her personal experiences and medical challenges to help others, especially those within the EB community. She serves on patient advisory boards for biotechnology companies working on clinical trials in EB and has spoken directly with the FDA at several conferences. Michelle is a passionate and inspiring advocate providing a voice for all those who battle rare disease.