Staff

mICHAEL hUND, mba

CHIEF EXECUTIVE OFFICER

Michael joined EBRP as the CEO in 2017. Michael previously served as the Director of Development for the Multiple Myeloma Research Foundation, leading their successful $100 million Curing Cancer Now campaign driving achievement of the largest longitudinal genomic dataset in cancer, an end-to-end Precision Medicine Model, a 25 member consortium of leading academic medical centers, 10 approved treatments in just over a decade, and the tripling of patient life expectancy. Previously, Michael spent over a decade in leadership at the actor and philanthropist Paul Newman’s Hole in the Wall Gang Fund, working on behalf of children and their families battling cancer and other life-threatening illness.

Michael received his Master’s in Business Administration (MBA) from Yale University, CORe credential from Harvard Business School, and an undergraduate degree in Philosophy from the University of Kansas. Michael has spent his career dedicated to transforming healthcare and also sits on the boards of numerous non-profit organizations. He lives in Connecticut with his wife Sarah and four daughters.

Kiley bergin

VICE PRESIDENT OF DEVELOPMENT

Kiley Bergin joined EBRP in April 2021 as VP of Development. She graduated from Providence College with a Bachelor's of Arts in English, and a Minor in Writing. Kiley previously spent 6 years at the Multiple Myeloma Research Foundation in the Events Department which raised $9M annually. She managed Signature and Development Events as well as key relationships with major donors and supporters. Prior to that, she worked at Marc Fisher Footwear and PEOPLE Magazine, but since joining the nonprofit world in 2015, she has decided to dedicate her life to bettering the lives of others who suffer from illness and disease. She lives in Connecticut with her husband, Ben.

Craig fox, mba

CONTROLLER

Craig Fox is a highly qualified, technically competent and knowledgeable accounting professional. Craig started his career in the financial services industry working in various senior accounting, finance, marketing, and strategic planning and analysis positions at Fidelity Investments, Charles Schwab, and Wells Fargo. After working for a number of industry leaders in the financial services industry Craig started and ran a successful accounting and financial services consulting business in the San Francisco Bay Area for 20 years with a focus on the nonprofit sector.

Craig received his Master’s in Business Administration (MBA) from Babson College, and an undergraduate degree in Finance from the University of Connecticut. Craig now lives in New York where he continues to work in the nonprofit sector.

stephanie Ishoo

DIRECTOR OF COMMUNICATIONS

Stephanie joined EBRP in 2017 as Development Associate and began her role as Director of Communications in 2019. She graduated with honors from George Washington University with a Bachelor of Science in Biological Sciences and a minor in Public Health, aspiring to make change in the healthcare industry. While at GW, Stephanie acted as Executive Vice President of Alpha Delta Pi, overseeing chapter operations and charity initiatives for their nationwide partnership with the Ronald McDonald House Charities. She lives in Manhattan with her husband and their dog.

michelle hall

SENIOR ACCOUNTANT

Michelle works as the Senior Accountant for EB Research Partnership and as a global ambassador for the EB community. She has received worldwide recognition for a short film on her life with EB called “This Is Michelle.” For the last 10 years, Michelle has mentored youth with EB and various skin conditions as a volunteer counselor at various camps across the United States. Living with Recessive Dystrophic Epidermolysis Bullosa (RDEB), Michelle uses her personal experiences and medical challenges to help others, especially those within the EB community. She serves on patient advisory boards for biotechnology companies working on clinical trials in EB and has spoken directly with the FDA at several conferences. Michelle is a passionate and inspiring advocate providing a voice for all those who battle rare disease.

Maxson thomas

DEVELOPMENT ASSOCIATE

Maxson joined the EBRP team as Development Associate in 2020. He graduated from Fordham University with a Bachelor of Arts in Communications and Culture and minors in Marketing and American Studies. While at Fordham, Maxson served as Executive President of the Campus Activities Board, planning the majority of both large and small scale student led campus events. Off campus, Maxson held internships in Development at The Metropolitan Museum of Art and American Ballet Theatre where he aided in the execution of major capital campaigns. An avid member of Team EBRP, he has participated in both the NYC Full and Half Marathon and plans to continue to run with the team in the near future.