GET EB ACTIVE

Epidermolysis Bullosa (EB) still waits for its cure, but momentum is building. 
Create your fundraiser, your way, and join thousands of supporters working to make that cure possible.

CHECK OUT OUR EB ACTIVE TOWN HALL

How to get eb active in 3 simple steps:

1. Choose your activity
Run a 5K, host a gala, take a polar plunge, organize a golf tournament, or any event that inspires and rallies your community. No experience required.

2. Register and start your planning journey
Submit the interest form below and EBRP will set you up with a personalized fundraising page, marketing materials, social media graphics, and a dedicated staff contact to coach you through the process.

3. Fundraise and share your story
Share your page with friends, family, and colleagues to raise funds and awareness. Thanks to our angel investors, 100% of every donation goes directly towards innovative EB research.

JOIN THE MOVEMENT

​See what's possible 

Join an existing event or use one of these as inspiration to start your own.

here to help

From pre-event logistics to social media promotion and more, our team is ready to jump in wherever you need us!

EXPLORE RESOURCES

community voices

“The resources, the email templates, the planning guides, the donation pages, the check-ins, it’s like a team that’s helpful and it’s not just you that has to take the burden of trying to fumble your way through if you’ve never done it.” 
​- Annie McKenzie

“In November of 2025 I saw a YouTube reel of a young boy called John Hudson. It broke my heart to see what he and other kids just like him have to go through on a daily basis as well as their parents and family. After I saw the reel, I felt compelled to do something to raise money. This crazy thought popped into my mind that during Chinese New Year I could walk/run from Taipei to Tainan which is about 300km. So I began training and have been hitting the tarmac with devotion and an unwillingness to quit ever since.” 
​- Tim Morgan

​“By getting involved with your family and community, you will not only help these kids deserving of a cure, you will also experience personal growth by working together for such an important and impactful purpose.”
​- Damian Rippole

Ready​ to get EB Active? 
​Fill out our interest form and an EBRP team member will reach out to help you plan your event.

START MY FUNDRAISER

Thank you to our eb active sponsors

GUARDIAN SPONSOR