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About EB Active
EB Active is a way for you to create your own fundraiser in your community to raise awareness and funds for EB Research Partnership and help us find a cure for Epidermolysis Bullosa (EB). When you decide to get EB Active, we will provide you with personalized tips and materials to help you create the most successful event possible.
Previous ways our supporters have been EB Active in the past have included polar plunges, 5Ks, triathlons, galas, and more. There are no fundraising minimums. We encourage you to EB Active at any level and get your friends, family, neighbors, classmates and colleagues involved! Learn more by downloading our how to guide:
Previous ways our supporters have been EB Active in the past have included polar plunges, 5Ks, triathlons, galas, and more. There are no fundraising minimums. We encourage you to EB Active at any level and get your friends, family, neighbors, classmates and colleagues involved! Learn more by downloading our how to guide:
about the cause
EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth. EB Research Partnership was founded by two families on separate coasts that shared a singular goal: to find a cure for their children and for all others that suffer from EB. With support from close friends Jill and Eddie Vedder, the lead singer of Pearl Jam, EB Research Partnership was founded in 2014.
EB Research Partnership has funded over $50 million in research and has funded over 120 research projects. With the support of you and your community, we will continue to invest in the most promising research projects and heal EB once and for all.
EB Research Partnership has funded over $50 million in research and has funded over 120 research projects. With the support of you and your community, we will continue to invest in the most promising research projects and heal EB once and for all.
WAYS TO GET INVOLVED
You can EB Active in your community in whatever way works best for you. Here are some examples of ways our supporters are currently getting EB Active. You can join these fundraising efforts or start your own!
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2025 TCS NYC Marathon
Our 10 Team EBRP runners are taking to the streets of NYC to raise funds and awareness for EB and help us race towards a cure! Help a runner meet their fundraising goal using the link below. |
PLUNGE FOR ELODIE
The Plunge was started as a local event in 2018 to raise funds and awareness for EB. Now in its 8th consecutive year, the event has grown into an international movement and has reached $3 million raised for critical research aimed at curing EB and other rare diseases. |
PEER TO PEER FUNDRAISING
Grateful for Graham is back with its 4th annual 5K walk/run in Utica, NY, celebrating 5-year-old Graham Robertello, who was born with EB. Can’t make it in person? Join Virtually! |
...OR CREATE YOUR OWN UNIQUE EVENT!
HOW TO GET STARTED:
Please email [email protected] and we can help determine which fundraising event is right for you! Already know what you'd like to do? Great! We can also provide you with personalized resources based on your type of event.
