LEARN HOW TO EB ACTIVE IN YOUR COMMUNITY!

Whether you want to run 26.2 miles, plunge into freezing water, host a lemonade stand, or create your own event, there are unlimited ways to EB Active!

About EB Active

EB Active is a way for your to create your own event in your community to raise money for EB Research Partnership and help us find a cure for Epidermolysis Bullosa (EB). When you decide to EB Active, we will provide you with tips and materials to help you create the most successful event possible.  

Previous ways our supporters have been EB Active in the past include polar plunges, 5Ks, triathlons, galas, and more. There are no fundraising minimums. We encourage you to EB Active at any level and get your friends, family, neighbors, classmates and colleagues involved!

about the cause

EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth. EB Research Partnership was founded by two families on separate coasts that shared a singular goal: to find a cure for their children and for all others that suffer from EB. With support from close friends Jill and Eddie Vedder, the lead singer of Pearl Jam, EB Research Partnership was founded in 2014.

EB Research Partnership has funded over $50 million in research and has funded over 120 research projects. With the support of you and your community, we will continue to invest in the most promising research projects and heal EB once and for all.

WAYS TO GET INVOLVED

You can EB Active in your community in whatever way works best for you. Here are some examples of ways our supporters have been EB Active. You can join these fundraising efforts or start your own!

RACE FOR EB
Race towards a cure! Our upcoming race is the 2023 United Airlines NYC Half Marathon.

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PLUNGE FOR ELODIE
The Plunge was started as a local event in 2018 to raise funds and awareness for EB. Now in its 6th consecutive year, the event has grown into an international movement and has surpassed $1.5 million raised for critical research aimed at curing EB and other rare diseases. ​

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PEER TO PEER FUNDRAISING
Fundraise for EBRP's upcoming Venture into Cures event!

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...OR CREATE YOUR OWN UNIQUE EVENT! 

HOW TO GET STARTED:

READY TO EB ACTIVE?

Download our Guide for all of the information and tools you need to be EB Active

Click the link below to create your very own fundraiser or create your own version of any the events above!

guide

CREATE MY EVENT