The Community Council helps drive research efforts by educating the EB community with reliable and up-to-date information from trusted specialists in the EB space. Throughout the year, EBRP hosts discussions on topics like current research, clinical trials, understanding EB, and more. All sessions are publicly available and archived on this page.
Please join us for our webinar today at 7PM EST / 4PM PST called "What You Need to Know to Participate in the DeFi-RDEB Clinical Study" presented by Anna Bruckner, MD, MSCS and M. Peter Marinkovich, MD.
Click here to join: https://zoom.us/j/98023495492