COMMUNITY COUNCIL

The Community Council helps drive research efforts by educating the EB community with reliable and up-to-date information from trusted specialists ain the EB space. Throughout the year, EBRP hosts discussions on topics like current research, clinical trials, understanding EB, and more. All sessions are publicly available and archived on this page. 

RECENT Presentations

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Caregiver Role Strain | Monday, October 28, 2019 at 3pm PDT
Presented by: Dr. Anne Lynch Jordan, PhD and Andy Helgeson, BSN, RN

WATCH RECORDING

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Clinical Trials Update | Wednesday, October 30, 2019 at 3pm PDT
Presented by: Dr. Emily Gorell, DO, MS, Dr. Albert Chiou, MD, MBA, John Maslowski, Dr. Peter Marinkovich, MD, Suma Krishnan, Dr. Amy Paller, MD, Janet Boylan

WATCH RECORDING

Archived Presentations

Clinical Trials Updates

For Patients & Caregivers

For EB Researchers