COMMUNITY COUNCIL
The Community Council aims to educate the EB community with reliable and current information about clinical trials, patient care, and more from trusted specialists and researchers in the field. Community Council represents various perspectives and values from people within the EB community, such as individuals with EB, families, advocates, doctors, supporters and more. Throughout the year, the Community Council will host a variety of discussions on a specific topic related to EB. Topics could include current research, clinical trials, advocacy, genetics, and best practices.