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PLUNGE FOR ELODIE | MARCH-April 2026, GLOBALThe 9th annual Plunge For Elodie, a global event to raise awareness and funds for critical EB research is coming back to make bigger waves than ever before. Whether you create your own fundraising page, take the plunge, donate or sponsor, all are welcome to join us as we make a splash to #healEB.
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GLOBAL WATCH PARTIES | ANYTIME, ANYWHERE
With Matter of Time launching globally on Netflix on February 9, 2026, we’re creating a way for people everywhere to share the collective energy of watching this powerful story together. Global Watch Parties will bring the magic of a premiere night straight into living rooms, backyards, school gyms, offices, and community spaces across the globe. Each host will receive a curated “Watch Party Kit” with everything needed to transform their gathering into a movie-night experience while raising critical funds and awareness for EB.
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EB ACTIVE EVENTS | Anytime, anywhereEB Active is a way for you to create your own fundraiser in your community to raise awareness and funds for EB Research Partnership and help us find a cure for Epidermolysis Bullosa (EB). When you decide to get EB Active, we will provide you with personalized tips and materials to help you create the most successful event possible. There are no fundraising minimums. We encourage you to EB Active at any level and get your friends, family, neighbors, classmates and colleagues involved!
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annual events
NYC Half & FulL MARATHONsOur team is looking forward to cheering on our Team EBRP runners as they race towards a cure!
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plunge for elodieThe 9th Annual Plunge For Elodie is back virtually and in-person in March and April 2026!
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Grateful for Graham 5KGrateful for Graham is back with its 5th annual 5K walk/run in Utica, NY, celebrating Graham Robertello who was born with EB. Can’t make it in person? Join Virtually!
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Butterfly BallThe Annual Hallie Grace Memorial Butterfly Ball for EB is hosted every year in celebration of what would have been sweet angel Hallie Grace's birthday. Stay tuned for more information on this year's event!
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Wesson's Wish Golf TournamentThe Annual Wesson's Wish Golf Tournament takes place in Texas every year. Wesson's Wish was started in honor of Wesson who completed his battle with EB on September 5th, 2021, launching a battle cry to find a cure.
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Change for CharleyChange for Charley is excited to be back in-person in Chicago, IL for 2026! Stay tuned for more information on this year's event.
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