|
The EB Cure Classic | September 14 2026, Middletown, MDGrab your golf clubs and join us for the inaugural EB Cure Classic! All proceeds from this event will go directly towards life-saving research to treat and cure the rare genetic skin disorder, Epidermolysis Bullosa. Attendees can expect a full day of golf, good food, and great company, including breakfast and lunch, goodie bags and giveaways, and a special awards ceremony. Spots are limited, so be sure to enter the tournament before it sells out!
|
|
TCS New York City marathon | November 1 2026, New york, nyThe TCS New York City Marathon—the best day of the year, in the best city in the world—is one of the most inclusive and accessible sporting events in the world, with a record-breaking number of athletes every year. This year's team has been filled, and our 10 Team EBRP runners are taking to the streets of NYC to raise funds and awareness for EB and help us race towards a cure!
|
|
Venture into cures | november 11 2026, NEW york, nyEBRP's signature event is back! Guided by this year's theme, Where Stories Take Flight, this special evening will unfold through the voices of the EB community, live music, performances, and visual art. And we are just getting started. A lot of surprises are still waiting in the wings, and we will be revealing them in the months to come. You won't want to miss this one-of-a-kind event!
|
|
GLOBAL WATCH PARTIES | ANYTIME, ANYWHERE
With Matter of Time launching globally on Netflix on February 9, 2026, we’re creating a way for people everywhere to share the collective energy of watching this powerful story together. Global Watch Parties will bring the magic of a premiere night straight into living rooms, backyards, school gyms, offices, and community spaces across the globe. Each host will receive a curated “Watch Party Kit” with everything needed to transform their gathering into a movie-night experience while raising critical funds and awareness for EB.
|
|
EB ACTIVE EVENTS | Anytime, anywhereEB Active is a way for you to create your own fundraiser in your community to raise awareness and funds for EB Research Partnership and help us find a cure for Epidermolysis Bullosa (EB). When you decide to get EB Active, we will provide you with personalized tips and materials to help you create the most successful event possible. There are no fundraising minimums. We encourage you to EB Active at any level and get your friends, family, neighbors, classmates and colleagues involved!
|
|
|
