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EVENTS

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PLUNGE FOR ELODIE | MARCH-April 2025

Join us for the 8th annual Plunge For Elodie, a global event to raise awareness and funds for critical EB research! Whether you create your own fundraising page, take the plunge, donate or sponsor, all are welcome to join us as we make a splash to #healEB. 
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annual events

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NYC FULL MARATHON

Our team is looking forward to cheering on our 10 Team EBRP runners this November as they race towards a cure!
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plunge for elodie

The 8th Annual Plunge For Elodie is back virtually and in-person in March and April 2025!
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Grateful for Graham 5K

Grateful for Graham is back with its 4th annual 5K walk/run in Utica, NY, celebrating 5-year-old Graham Robertello, who was born with EB. Can’t make it in person? Join Virtually! ​
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Butterfly Ball

The 4th Annual Hallie Grace Memorial Butterfly Ball for EB will take place on June 6, 2025  at the gorgeous Charles H. Morris Center at the Trustees Garden, Savannah, GA, in celebration of what would have been sweet angel Hallie Grace's 4th birthday. 
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Wesson's Wish Golf Tournament

The 3rd Annual Wesson's Wish Golf Tournament will take place October 28, 2025 in Spring, TX. Wesson's Wish was started in honor of Wesson who completed his battle with EB on September 5th, 2021, launching a battle cry to find a cure.
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Change for Charley

Change for Charley in is back in-person in Chicago, IL for 2025! Stay tuned for the date.
Stay Tuned!

Watch the VENTURE INTO CURES Digital Shows

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WATCH ALL

EB Research Partnership

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COPYRIGHT @2025 EB RESEARCH PARTNERSHIP. ALL RIGHTS RESERVED. EB RESEARCH PARTNERSHIP IS A 501(C)(3) NON PROFIT.

  • Epidermolysis Bullosa
    • What is EB?
    • Life with EB
    • Resources
  • Research
    • Our Impact
    • Scientific Advisory Board
    • Clinical Trials >
      • Filsuvez
      • Vyjuvek
      • ZEVASKYN
    • Town Halls
    • Apply for a Grant
  • Get Involved
    • Donate
    • Sponsor
    • EB Active
    • Events
    • The Effect
    • Shop
    • Give Cryptocurrency
    • Give Stocks
    • Give through Donor Advised Funds (DAF)
    • Accelerator Fund
  • Media
    • Matter of Time Film
    • Press
    • Videos
  • About Us
    • Our Mission
    • Financials
    • Venture Philanthropy
    • Supporter Spotlights
    • Leadership >
      • Board of Directors
      • Staff
  • Donate