annual events
NYC FULL MARATHONOur team is looking forward to cheering on our 10 Team EBRP runners this November as they race towards a cure!
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plunge for elodieThe 8th Annual Plunge For Elodie is back virtually and in-person in March and April 2025!
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Grateful for Graham 5KGrateful for Graham is back with its 4th annual 5K walk/run in Utica, NY, celebrating 5-year-old Graham Robertello, who was born with EB. Can’t make it in person? Join Virtually!
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Butterfly BallThe 4th Annual Hallie Grace Memorial Butterfly Ball for EB will take place on June 6, 2025 at the gorgeous Charles H. Morris Center at the Trustees Garden, Savannah, GA, in celebration of what would have been sweet angel Hallie Grace's 4th birthday.
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Wesson's Wish Golf TournamentThe 3rd Annual Wesson's Wish Golf Tournament will take place October 28, 2025 in Spring, TX. Wesson's Wish was started in honor of Wesson who completed his battle with EB on September 5th, 2021, launching a battle cry to find a cure.
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Change for CharleyChange for Charley in is back in-person in Chicago, IL for 2025! Stay tuned for the date.
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