PLUNGE FOR ELODIE | MARCH 3-April 7

Join us for the 7th annual Plunge For Elodie, a global event to raise awareness and funds for crticial EB research! Whether you create your own fundraising page, take the plunge, donate or sponsor, all are welcome to join us as we make a splash to #healEB. 

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VENTURE INTO CURES SEATTLE | OCTOBER 22-24

On October 22nd – 24th in Seattle, EB Research Partnership hosted a first of its kind series of events combining two nights of exclusive Eddie Vedder concerts at the legendary Benaroya Hall with an awards dinner and a Summit all to benefit EB Research Partnership! These events brought together leaders across medical research, science, technology, art, music and the patient community focused on how, together, we can cure EB and pioneer the model for all rare diseases. 

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RACING TOWARDS A CURE | 2023

Join Darin Mock as he races across the country towards a cure. Darin will be partnering with EBRP to host a series of events at his races - which will feature his iconic EBRP car!

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CHANGE FOR CHARLEY | In partnership with venture into cures

Change for Charley has raised over $1M raised to date. Join us this year by supporting EBRP's Venture into Cures, a one-of-a-kind event taking place in Seattle this October! We're looking forward to being back in-person in Chicago in 2024. 

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​venture into cures DIGITAL SHOW 
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Over the past three years, this inspiring digital event has raised incredible awareness and funds for EB, totaling over $6M. We are so grateful to have been joined by EB community members, doctors and researchers, and a host of celebrity friends over the past three shows, including Billie Eilish, Will Ferrell, Tom Holland, John Legend, Chris Pratt, Keanu Reeves, Olivia Rodrigo, Emma Watson, and more. 

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annual events

believe in brady

Stay tuned for next year's date for Believe in Brady in Fredericksburg, TX.

plunge for elodie

The 6th Annual Plunge For Elodie is back virtually and in-person in March and April 2023!

Change for Charley

Change for Charley in is back in-person in Chicago, IL for 2023! Stay tuned for the date.

WATCH LAST YEAR'S VENTURE INTO CURES EVENT

WATCH SHOW