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Matter of miles | june 12 - 28 2026, globalMatter of Miles is a global, virtual run/walk fundraiser inviting you to move with purpose. Over a two-week period, you choose your own mileage goal and rally your network to support you by donating per mile or contributing toward your overall personal fundraising goal. Inspired by the urgency and momentum of Matter of Time, this campaign turns movement into momentum, helping advance EBRP’s mission to find a cure for EB as quickly as possible while connecting our community of supporters all around the world.
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TCS New york city MARATHON | november 1 2026, NEW york, nyThe TCS New York City Marathon—the best day of the year, in the best city in the world—is one of the most inclusive and accessible sporting events in the world, with a record-breaking number of athletes every year. This year's team has been filled, and our 10 Team EBRP runners are taking to the streets of NYC to raise funds and awareness for EB and help us race towards a cure!
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GLOBAL WATCH PARTIES | ANYTIME, ANYWHERE
With Matter of Time launching globally on Netflix on February 9, 2026, we’re creating a way for people everywhere to share the collective energy of watching this powerful story together. Global Watch Parties will bring the magic of a premiere night straight into living rooms, backyards, school gyms, offices, and community spaces across the globe. Each host will receive a curated “Watch Party Kit” with everything needed to transform their gathering into a movie-night experience while raising critical funds and awareness for EB.
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EB ACTIVE EVENTS | Anytime, anywhereEB Active is a way for you to create your own fundraiser in your community to raise awareness and funds for EB Research Partnership and help us find a cure for Epidermolysis Bullosa (EB). When you decide to get EB Active, we will provide you with personalized tips and materials to help you create the most successful event possible. There are no fundraising minimums. We encourage you to EB Active at any level and get your friends, family, neighbors, classmates and colleagues involved!
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